dora201077's Journey:

Spouse/Partner: Skin Cancer - Melanoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Male, Age: 41, Stage IIIB, BRAF mutation positive: Don't Know, c-kit positive: Don't Know

  1. 1
    • dora201077
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    dora201077's Avatar

    Cancer is back/Recurred

    Oh No

    yes, he had limph nodes removed this year in february, they were negative..but in june 7th he had some other nodes removed, proven to be positive...that's hard to digest, it felt harder than expected...

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  2. 2
    • dora201077
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
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    Surgery to remove cancer that has spread

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • dora201077
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
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    Immunotherapy

    Drug or Chemo Therapy

    we start interferon in a few days....High dosage...will be back with remarks..

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • dora201077
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    dora201077's Avatar

    my husband has to retire form work field in a few months

    Decision Point

    He's not able to go to work now due to a limph leakage and in 3 months he has to retire on account of his disease. That is a hard decision

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  5. 5
    • dora201077
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    dora201077's Avatar

    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    • dora201077
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    dora201077's Avatar

    Anniversary

    Celebration

    on may first my hubby wore a blue shirt saying "one year and still counting..."

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  7. 7
    • dora201077
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    dora201077's Avatar

    Other

    Loss

    lost part of the use of his right leg

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  8. 8
    • dora201077
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    dora201077's Avatar

    Decision Point

    This person has yet to add any details about this experience.

    0 Comments
  9. 9
    • dora201077
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    dora201077's Avatar

    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  10. 10
    • dora201077
    • Experience with Skin Cancer - Melanoma
    almost 4 years ago
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    Bilateral nodes excision

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  11. 11
    • dora201077
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
    dora201077's Avatar

    Procedure or Surgery

    another surgery for getting out limph nodes. Expecting resunts this tuesday

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  12. 12
    • dora201077
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
    dora201077's Avatar

    Procedure or Surgery

    My husband had a "transit metastatic tumor" removed form his right leg. The surgery opened through a hole that remained after the removal of the surgical thread and it's leaking limph every day even now, after 1 month. the surgeon said that it'd close at some point....but it didn't so far..

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  13. 13
    • dora201077
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
    dora201077's Avatar

    Oh No

    PET CT revealed small 4-7 mm lung nodules and other 4 nodules, only one of them being surgically removed next week. So it's stage 4 melanoma. can't believe it! they could be side effects of 2 1/2 months of interpheron but it's a long shot...

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  14. 14
    • dora201077
    • Experience with Skin Cancer - Melanoma
    about 3 years ago
    dora201077's Avatar

    Cancer is shrinking

    Celebration

    we finally had a ct scan after 8 weeks of treatment, and the images show that the lung nodules and the other nodules decreased a few mm...the doc said that this was prove that zelboraf pills really worked...who had experience with zelboraf pills can tell me if at this ratio (lung nodules from 7 to 5 mm, other from 17 to 14 mm) wecan hope for more.? if he continues taking the pills as the doc said...thanks a lot

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