Taagbu's Journey with Chronic Lymphocytic Leukemia (CLL)

Patient: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Chronic Lymphocytic Leukemia (CLL)

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 5 years ago, Female, Age: 48

  1. 1
    • Taagbu
    • Experience with Chronic Lymphocytic Leu...
    about 5 years ago
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    Diagnosed

    Oh No

    Why do I have an "Old Man's Cancer"?

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  2. 2
    • Taagbu
    • Experience with Chronic Lymphocytic Leu...
    about 5 years ago
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    Ofatumumab

    Clinical Trial

    I did an 8 week infusion therapy of the Monoclonal Antibody, Ofatumumab.

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  3. 3
    • Taagbu
    • Experience with Chronic Lymphocytic Leu...
    about 5 years ago
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    Cancer has spread/Metastasized

    Oh No

    6 weeks after the treatment ended I had scans and bone marrow biopsy done all of the lymph odes have increased about 30% and new ones appeared.

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  4. 4
    • Taagbu
    • Experience with Chronic Lymphocytic Leu...
    about 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I started FCR treatment on 9/22/12. I will do 3 rounds then rescan and bone marrow biopsy. I can do up to 6 rounds.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
  5. 5
    • Taagbu
    • Experience with Chronic Lymphocytic Leu...
    almost 5 years ago
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    Nausea/Vomiting

    Side Effects

    Horrible nausea for about 10 days after round #1 FCR

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  6. 6
    • Taagbu
    • Experience with Chronic Lymphocytic Leu...
    over 4 years ago
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    Remission

    Celebration

    On 3/20/13 I was told I am in remission! There is no evidence of Lymphoma in the bone marrow and they cannot find any enlarged my nodes! Best thing is that I don't even have to get blood drawn for 6 weeks and I don't have to see the doctor for 3 months!!

    2 Comments
  7. 7
    • Taagbu
    • Experience with Chronic Lymphocytic Leu...
    almost 4 years ago
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    IVIg

    Drug or Chemo Therapy

    Did 6 rounds of this 2013/14. IVIG was great helping get my immune system back.

    Easy to Do: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
  8. 8
    • Taagbu
    • Experience with Chronic Lymphocytic Leu...
    over 2 years ago
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    Cancer is back/Recurred

    Oh No

    Made it almost 2 years in remission. Now I am in Watch and Wait.

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