myb's Journey with Colorectal (Colon) Cancer

Survivor: Colorectal (Colon) Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 5 years ago, Female, Age: 56, KRAS mutation positive: No, BRAF mutation positive: No, Stage IIIC

  1. 1
    • myb
    • Experience with Colorectal (Colon) Cancer
    almost 5 years ago
    myb's Avatar

    Diagnosed

    Oh No

    I went in for a colonoscopy at 50 and my gastroenterologist diagnosed cancer and said that I needed to see a surgeon immediately to have the cancer removed

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  2. 2
    • myb
    • Experience with Colorectal (Colon) Cancer
    almost 5 years ago
    myb's Avatar

    Laparascopic colon surgery

    Procedure or Surgery

    I was in Upenn Hospital in Philadelphia PA for 6 days.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Neutral/NA
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  3. 3
    • myb
    • Experience with Colorectal (Colon) Cancer
    almost 5 years ago
    myb's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had 12 treatments of chemo with Oxaliplatin (reaction at chemo 11, so stopped) and Folfox. AT the 1st chemo I also received Leucavorin but due to severe mouth sores, we stopped this injection after chemo 1. Due to neuropathy issues, my doc said to start taking Alpha Lipoic Acid 300 mg twice a day.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
  4. 4
    • myb
    • Experience with Colorectal (Colon) Cancer
    almost 5 years ago
    myb's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    1 week after finishing chemo, I was hit with constant tingling in my feet and hands. Doc said to stay on Alpha Lipoic Acid to help and that it could last a couple of months

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  5. 5
    • myb
    • Experience with Colorectal (Colon) Cancer
    almost 5 years ago
    myb's Avatar

    Finished treatment

    Celebration

    Finished chemo on 9/13 and had new baseline tests on 9/14 and was Cancer Free!

    2 Comments
  6. 6
    • myb
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    myb's Avatar

    Schedule surgery to remove chemo port finally!

    Celebration

    My Oncologist wanted me to keep chemo port till 6 months after chemo and ALL CLEAR. Got the Good news today so off to see the surgeon to schedule surgery next week. Yahoo!

    1 Comment
  7. 7
    • myb
    • Experience with Colorectal (Colon) Cancer
    about 4 years ago
    myb's Avatar

    Anniversary

    Celebration

    I year ago today I finished chemo for stage 3 colon cancer. I might not be the same person I was before cancer, but I am more accepting of the life I lead these days. Thankfully, my 3 month scan/doc appointment went well and I am still NED! That to me is everything. I accept the fatigue and neuropathy as just bumps along the road of life. This too and Friday the 13th! Not superstitious here at all ;)

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  8. 8
    • myb
    • Experience with Colorectal (Colon) Cancer
    about 4 years ago
    myb's Avatar

    Is diabetes the cause of fatigue

    Decision Point

    I have extreme fatigue since chemo and no blood work to date shows cause for it and 1 year out of chemo. Though I do have celiac disease (gluten allergy) which makes me susceptible to diabetes along with the osteopenia and thyroid problems I had prior to cancer/chemo. So my Endo is going to test for diabetes to see if the cause for my extreme fatigue at this point. I eat healthy and exercise but not getting past it. Waiting for the script in the mail to go for test.

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  9. 9
    • myb
    • Experience with Colorectal (Colon) Cancer
    over 3 years ago
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    Fatigue (tiredness)

    Side Effects

    I started back to work in November but the fatigue has been kicking my butt (ha ha!) so to say! The pot of coffee a day was killing my stomach and major crash and burn afterwards. I decided to go the route of trying acupuncture. So far only 3 sessions, but after the 2nd one I did notice that I didn't need coffee infusion right away when I got up. I will see how this goes but going 3 times a week for at least a bit to help fatigue 1st and feet neuropathy 2nd.

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  10. 10
    • myb
    • Experience with Colorectal (Colon) Cancer
    over 3 years ago
    myb's Avatar

    Anniversary

    Celebration

    March 1st was my 2 year cancer-versary of stage 3 Colon Cancer Surgery. On Friday March 14th, I had my last 3 month CT Scan, blood work and Oncologist appointment as now get to start every 6 months for next 3 years! CT Scan was all clear, CBC blood word was good and the other blood work will be in next week. March 21st is my 1 year colonoscopy. I continue to raise awareness in my town, my state and my hospital community by telling my story of going for that preventative colonoscopy at 50 and being told I had cancer with no symptoms.

    3 Comments