hjtobar's Journey with Small Intestine Cancer

Caregiver: Small Intestine Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Female, Age: 64

  1. 1
    • hjtobar
    • Experience with Small Intestine Cancer
    over 4 years ago
    hjtobar's Avatar

    Diagnosed

    Oh No

    Mom went in for a check-up after not feeling well for about two months, and was informed that what ever was going on was very serious and was immediately scheduled for a liver biopsy and colonoscope.

    0 Comments
  2. 2
    • hjtobar
    • Experience with Small Intestine Cancer
    over 4 years ago
    hjtobar's Avatar

    Biopsy/Exploritory

    Procedure or Surgery

    After a biopsy was conducted it was determined by her surgeon that she had cancerous lesions in her colon and liver.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. 3
    • hjtobar
    • Experience with Small Intestine Cancer
    over 4 years ago
    hjtobar's Avatar

    Choosing an oncologist

    Decision Point

    After being denied to be seen by multiple doctors until her results were back in, she was transferred from the hospital to another hospital under the care of her first oncologist. She had become very dehydrated and ill while home and was admitted to the hospital prior to being sent three and a half hours away to a new hospital. The two doctors working her case did multiple tests, and were able to connect her with a doctor willing to begin care while we waited for results.

    0 Comments
  4. 4
    • hjtobar
    • Experience with Small Intestine Cancer
    over 4 years ago
    hjtobar's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Mom had her first round of chemo in the hospital after being advised by her doctor that based on her symptoms, results, etc he believed he knew where the cancer had originated, and started based on his best guess. It was later determined that the cancer was originating in another location, so treatment would again change.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  5. 5
    • hjtobar
    • Experience with Small Intestine Cancer
    over 4 years ago
    hjtobar's Avatar

    Nausea/Vomiting

    Side Effects

    Mom became very ill after having her first round of the correct chemotherapy treatment. She was also very weak, tired, experienced complete loss of appetite and taste, among other side effects.

    0 Comments
  6. 6
    • hjtobar
    • Experience with Small Intestine Cancer
    over 4 years ago
    hjtobar's Avatar

    Relationship issues

    Oh No

    The current family members with whom my mother and I were staying with began to struggle with having my mom around, and it took a toll on our relationship. It became obvious very quickly that we needed to have moms treatment moved back home, and I would be going with her.

    0 Comments
  7. 7
    • hjtobar
    • Experience with Small Intestine Cancer
    over 4 years ago
    hjtobar's Avatar

    Wedding

    Celebration

    After my mother was diagnosed with cancer, I immediately left my job and decided that I would walk this path with her. She is more than just my mother, but rather my very best friend. My husband and I had picked out a ring a day before my mom had her very first appointment, and it became rather important to both he and I that we get married sooner rather than in a year as was planned. With the help of our amazing families, and friends we were able to pull off a wedding in less than a month. Having our wedding in one month was certainly stressful, overwhelming, and difficult at times, but the thought of possibly facing getting married without her one day was not an option. It was a very happy day for all of us :)

    0 Comments
  8. 8
    • hjtobar
    • Experience with Small Intestine Cancer
    over 4 years ago
    hjtobar's Avatar

    Mom is informed that she has terminal cancer

    Oh No

    At her consultation appointment with her new oncologist he informed mom that her bilirubin had again risen, and that he believed her cancer was terminal. He let her know that she had two options, either to continue chemo or begin hospice care. She was told that her liver would continue to fail, and that her first round of chemo blasted her liver, and he wasn't positive that her liver would be able to withstand further treatment.

    0 Comments
  9. 9
    • hjtobar
    • Experience with Small Intestine Cancer
    over 4 years ago
    hjtobar's Avatar

    Mom decides whether or not to continue with treatment

    Decision Point

    All of the decisions up until this point were made as a family, but my dad, brother, and myself this time believed that this decision should be made by her. She decided early the next morning to have a port placed, and would begin her treatment the following day. She was not going to give up.

    0 Comments
  10. 10
    • hjtobar
    • Experience with Small Intestine Cancer
    over 4 years ago
    hjtobar's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Mom was taken up to her new cancer treatment center, and was hooked up to a slow releasing, lower dose 48hr pump. Unexpectedly the doctor dropped by to inform my mom that her bilirubin had unexpectedly dropped, and he was beginning to feel more positively about her decision. It was the first good news we had received in a while :)

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  11. 11
    • hjtobar
    • Experience with Small Intestine Cancer
    over 4 years ago
    hjtobar's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Mom was again hooked up to her 48hr pump today, and the doctor is now giving her the full dose of chemotherapy medicine. Today we learned that her bilirubin dropped from 13 to 5, putting her back in the 'normal" range. Talk about prayers being answered!

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments