retepo's Journey with Rare Cancers

Caregiver: Rare Cancers

Patient Info: Diagnosed: about 13 years ago, Female, Age: 47

  1. 1
    • retepo
    • Experience with Rare Cancers
    over 4 years ago
    retepo's Avatar

    Other

    Clinical Trial

    This person has yet to add any details about this experience.

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  2. 2
    • retepo
    • Experience with Rare Cancers
    over 4 years ago
    retepo's Avatar

    Other

    Decision Point

    This person has yet to add any details about this experience.

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  3. 3
    • retepo
    • Experience with Rare Cancers
    almost 4 years ago
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    Feeding tube

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  4. 4
    • retepo
    • Experience with Rare Cancers
    almost 4 years ago
    retepo's Avatar

    urelumab

    Clinical Trial

    This person has yet to add any details about this experience.

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  5. 5
    • retepo
    • Experience with Rare Cancers
    almost 4 years ago
    retepo's Avatar

    Cancer has spread/Metastasized

    Oh No

    trial is off because cancer has been detected in her brain the doctors pleaded with the pharmaceutical company but they said she no longer fits the study and most likely won't fit another.

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