patchez0's Journey with Head & Neck/Throat Cancer

Patient: Head & Neck/Throat Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 5 years ago, Female

  1. 1
    • patchez0
    • Experience with Head & Neck/Throat Ca...
    over 4 years ago
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    Misdiagnosed

    Oh No

    After two years of being misdiagnosed with COPD, they found a large tumor on the larynx...

    0 Comments
  2. 2
    • patchez0
    • Experience with Head & Neck/Throat Ca...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    They used Erbatux on me for three months-once a week....not too bad of side affects

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  3. 3
    • patchez0
    • Experience with Head & Neck/Throat Ca...
    over 4 years ago
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    External radiation

    Radiation

    three months of radiation to the neck area....daily. Tiring from travel to the hospital for treatment but it was effective.... I still have the mask and plan to decorate it one day....

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
  4. 4
    • patchez0
    • Experience with Head & Neck/Throat Ca...
    over 4 years ago
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    Eating problems (anorexia)

    Side Effects

    I had several....eating problems, weight loss, anxiiety, pain accessive burn on throat, chin and mouth. Sleeplessness still suffering from these problems Do not have feeding tube...so eating is difficult

    0 Comments
  5. 5
    • patchez0
    • Experience with Head & Neck/Throat Ca...
    about 3 years ago
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    Remission

    Celebration

    Cancer free after treatment 18 months...(am told if it comes back it usually comes back within two years...and we are approaching that and very hopeful.

    0 Comments
  6. 6
    • patchez0
    • Experience with Head & Neck/Throat Ca...
    about 3 years ago
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    another lump....but drs don't feel it is cancer just a bump

    Oh No

    I hear what the doctors say...and I hear it's not too worry about but after cancer...once well I worry and fear...but trying not too....asking for prayers

    0 Comments
  7. 7
    • patchez0
    • Experience with Head & Neck/Throat Ca...
    about 3 years ago
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    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  8. 8
    • patchez0
    • Experience with Head & Neck/Throat Ca...
    about 3 years ago
    patchez0's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Erbatux

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  9. 9
    • patchez0
    • Experience with Head & Neck/Throat Ca...
    about 3 years ago
    patchez0's Avatar

    External radiation

    Radiation

    To neck area...still have the mask-intend to decorate it someday

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    2 Comments
  10. 10
    • patchez0
    • Experience with Head & Neck/Throat Ca...
    about 3 years ago
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    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  11. 11
    • patchez0
    • Experience with Head & Neck/Throat Ca...
    over 2 years ago
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    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  12. 12
    • patchez0
    • Experience with Head & Neck/Throat Ca...
    over 2 years ago
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    2 Year PET scan ...

    Oh No

    Although I believe I am still cancer free...I've the 2 year PET scan tomorrow and I am full of anxiety. I know its normal...but that"fear" creeps in. So please keep me in your prayers that I am still cancer free...thank you! Staying positive here..

    5 Comments
  13. 13
    • patchez0
    • Experience with Head & Neck/Throat Ca...
    about 2 years ago
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    Finished treatment

    Celebration

    Today was my last visit to my Oncologist....it was emotional as this was the last time I'll be seeing Dr.Sunkin...and he was a part of the team that saved my life and cured me of cancer! We talked for awhile, and hugged, he is so very happy with the progress I made, we talked about the first time he saw me and the road we traveled since. I confided my fears of not seeing him again...and he quickly responded it was a good thing not to need him but if I ever did he'd be there for me....and we hugged and we agreed to keep in touch. While I know that was said I also know that was probably the last time I will see him ....unless, and we're not planning on an "Unless" to happen....so while a happy day has some sad over tones....it is a good outcome....besides I will still have my radiologist for awhile and my ENT.....

    0 Comments
  14. 14
    • patchez0
    • Experience with Head & Neck/Throat Ca...
    8 months ago
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    Chemo brain

    Side Effects

    several side effects....hearing, speaking ..thrush, swallowing....sleeping limbs....blurry eyesite...and loss of several tastes I used to love (chocolate to name one)

    0 Comments
  15. 15
    • patchez0
    • Experience with Head & Neck/Throat Ca...
    8 months ago
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    Remission

    Celebration

    Cancer free...doesn't matter the side effects

    1 Comment
  16. 16
    • patchez0
    • Experience with Head & Neck/Throat Ca...
    5 months ago
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    Radiation

    radiation side effects keep popping up..

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment