Kaz's Journey with Slow Growing, Chronic Lymphocytic Leu...

Patient: Leukemia > Chronic Lymphocytic Leukemia (CLL) > Slow Growing

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 11 years ago, Male, Age: 57

  1. 1
    • Kaz
    • Experience with Slow Growing, Chronic Lymp...
    over 4 years ago
    Kaz's Avatar

    PCI-32765 (ibrutinib)

    Clinical Trial

    Currently in a Clinical Trial run through Ohio State University. This trial tests the effects of PCI-32765 on CLL. I had to end this trial after 4+ years as my CCL has come back. The CLL has "mutated" resulting in a recurrence. OSU provided with mith multiple options and continues to support me as I move to my next treatment. This medicine was very good for me with limited side effects. It was been very successful for me. I was diagnosed in September 2011 with Stage 4 CLL. This was the 3rd time I have been in Stage 4 in the past 5 years. I began my treatment using PCI-32765 (ibrutinib) in 10/11. My quality of life has been raised throughout this treatment. In 2013, I had less than 1% CLL in my blood. Ibrutinib has been an amazing successful drug for me. Dr. Byrd is a quality person and an excellent doctor. I feel blessed to have been able to join this trial.

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  2. 2
    • Kaz
    • Experience with Slow Growing, Chronic Lymp...
    over 4 years ago
    Kaz's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had FCR treatment in 2006 Since Oct. 2011, I have been treated with PCI-32765 and Ofatumumab through a trial run out of Ohio State University

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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  3. 3
    • Kaz
    • Experience with Slow Growing, Chronic Lymp...
    4 months ago
    Kaz's Avatar

    CAR T-cell

    Clinical Trial

    I'm starting this procedure in two weeks. Looking forward to a successful procedure.

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  4. 4
    • Kaz
    • Experience with Slow Growing, Chronic Lymp...
    4 months ago
    Kaz's Avatar

    Decision Point

    This person has yet to add any details about this experience.

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