Kemo's Journey:

Survivor: Leukemia > Acute Lymphocytic Leukemia (ALL) > T-Cell

Patient Info: Finished active treatment more than 5 years ago, Male, Age: 32

  1. 1
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
    Kemo's Avatar

    Diagnosed

    Oh No

    Age 3 ALL Found in Spinal Fluid

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  2. 2
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Start of what would be three years of ongoing treatment.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
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    External radiation

    Radiation

    Age three to six constant radiation to spinal cord.

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
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    Remission

    Celebration

    Age 6 end of Treatments

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  5. 5
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Chemotherapy begins again to treat the cells.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  6. 6
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
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    Cancer is back/Recurred

    Oh No

    ALL returns in Bone Marrow.

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  7. 7
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
    Kemo's Avatar

    Chemotherapy Fails

    Decision Point

    Chemotherapy wasn't working and the family didn't have any matches for a Bone Marrow transplant.

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  8. 8
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
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    Bone Marrow Transplant - Without Donor (Self Harvest)

    Clinical Trial

    Was placed in Sterilization room for nearly six months on Chemotherapy, without immune system.

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  9. 9
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
    Kemo's Avatar

    Finished treatment

    Celebration

    First successful Survivor at Childrens Hospital Los Angeles for Otologist Bone Marrow Transplant.

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  10. 10
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
    Kemo's Avatar

    Cancer is back/Recurred

    Oh No

    ALL found again, left testicle, after nearly five years.

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  11. 11
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
    Kemo's Avatar

    Fertility

    Loss

    Radiation would lead to loss of fertility as well as a numerous hormonal issues.

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  12. 12
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
    Kemo's Avatar

    External radiation

    Radiation

    Heavy radiation for 2 weeks.

    Painless Experience: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  13. 13
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
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    Collapsed Esophagus

    Side Effects

    Result of the previous radiation to the spinal cord. Caused inflamed scar tissue to build and grow around esophagus and force it to collapse.

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  14. 14
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
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    Problem with doctor

    Oh No

    Several Months passed and doctors failed to see the issue from my esophagus. Parents listened to doctors and months passed without nourishment. Lost more than half my body weight; Father carried me into emergency room at age 13 weighing 29 lbs.

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  15. 15
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
    Kemo's Avatar

    Finished treatment

    Celebration

    End of ALL treatments over course of almost ten years.

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  16. 16
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
    Kemo's Avatar

    Eating problems (anorexia)

    Side Effects

    With a vertical stomach, loss of appetite and a raised rib cage.

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  17. 17
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
    Kemo's Avatar

    Surgery

    Procedure or Surgery

    Feeding tubes were implanted to aid against undernourishment. Expected surgical procedure was to remove a portion of the colon and and replace the damaged area of the esophagus...and remove much of the surrounding scar tissue. During surgery, Doctor's opted to remove the section of esophagus and rotate the stomach instead of using the section of intestine.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
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  18. 18
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
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    Graduated High School

    Celebration

    Managed to come out alive.

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  19. 19
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
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    Graduated College

    Celebration

    Earned my Bachelor's Degree from California State University Channel Islands December 2007. Still Surviving.

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  20. 20
    • Kemo
    • Experience with T-Cell, Acute Lymphocytic...
    over 4 years ago
    Kemo's Avatar

    Depression/Anxiety

    Side Effects

    For the next five years I learned just what I was fighting for....sanity. My war was over, and I have yet to find anything in this new world. Welcome to emptiness, unemployment, and loneliness. The game only continues when you have more quarters to put in.

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