alimccalli's Journey with Hodgkin Disease

Survivor: Hodgkin Disease

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 5 years ago, Female, Age: 48, Stage IV

  1. 1
    over 4 years ago
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    Diagnosed

    Oh No

    I was diagnosed on 12/23/11. I still remember my surgeon coming in right before the surgery to remove a lymph node and telling me 'You have lymphoma' and me telling him "No, I have mono". I had tested positive for mono, and my regular doctor sent me for a needle biopsy 'just in case' because the swelling in my lymph nodes didn't go down. After my consultation with the surgeon, the needle biopsy turned into a lymph node removal that couldn't wait until after Christmas, and he sent me for a battery of tests before the surgery 4 days later. Within days of being referred to him, I was diagnosed with late Stage 4 Hodgkins. I will always be glad he wouldn't wait to do the lymph node removal and the pathology tests.

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  2. 2
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I was on the Increased Dosage BEACOPP regimen. It was pretty brutal. The side effects were intense, and my oncologist recommended before I even started the regimen that I not try to work. She was right - there was no way I could have worked through this. It was an 8 cycle regimen, with each cycle lasting 3 weeks. I had infusions on Days 1,2,3 and 8. I took oral chemo pills on days 1-7, steroids on days 1-14, and Nuepogen injections at home days 9-15. I was miserable, sick and exhausted and in pain from the Nuepogen shots, and would start feeling better about day 18-19, then have to start all over in just a couple days.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    over 4 years ago
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    Anemia (low red blood cell counts)

    Side Effects

    I had many side effects of treatment - anemia being just one of them. I was allergic to one of the drugs in my regimen, and they combatted that with a series pf pre-meds to suppress the allergic reaction. I was extremely fatigued, nauseous a lot of the time, achy, and suffered horrible insomnia where I wouldn't be able to sleep no matter how tired I was. I was nuetropenic every cycle, and had a blood transfusion with every cycle, usually at the end of week 2, which would make me feel much better.

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  4. 4
    over 4 years ago
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    Finished treatment

    Celebration

    July 16, 2012 - The official end of my last chemo cycle, and the day I got results from my post-treatment PET scan. My oncologist was as excited as I was that the cancer was gone. It was a long, incredibly hard road, but I could say I was officially in remission!

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  5. 5
    over 4 years ago
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    Removal of chemo port

    Procedure or Surgery

    10/8/12 - Had power port removed. While it was uncomfortable, I was to able do this with just a local anesthetic. I talked to the surgeon and the techs throughout the procedure, and it was all I could do not to laugh at the topic - which was the importance of not cheaping out when it comes to buying toilet paper. 3 days later, I am still sore, but SO glad the port is gone. It felt like I was really 'better' when I was told I could have it removed.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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