KRBaum's Journey with Skin Cancer - Melanoma

Patient: Skin Cancer - Melanoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Female, Age: 35, Stage IV, BRAF mutation positive: No, c-kit positive: Don't Know

  1. 1
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
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    Cancer is back/Recurred

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  2. 2
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
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    Sentinel lymph node biopsy

    Procedure or Surgery

    The incision was small, but very sore. Using those muscles in activities like pushing myself out of bed, or reaching for items above my head was painful and more difficult.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. 3
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
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    Wide excision surgery

    Procedure or Surgery

    This one hurt, a lot. The surgery was 2 hours long, and the incision ended up being twice as long at a total of 8 cm. I was fully sedated along with a local anesthetic for pain, and they had to give me a tube down my throat for breathing during the surgery. It is very difficult to raise my arm (left) or wash my hair, or open doors with my left arm. The stitches are not the dissolvable kind, but have to be removed in two weeks. There is a lot of draining from the incision, and I'm on meds for the pain. It's very sore.....

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
  4. 4
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
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    Cancer has spread/Metastasized

    Oh No

    The oncologist called me on Oct 18 to let me know the cancer has indeed spread to my lymph nodes. One out of the three lymph nodes they removed had cancer, which put me at stage 3A. Next step is a PET scan and a CT scan to determine if cancer has spread to other organs. First time I actually started to feel a little scared. The Oncologist also told me I'll need another surgery, which is waiting to be scheduled.

    0 Comments
  5. 5
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
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    Full lymph node dissection

    Procedure or Surgery

    I had three types of general anesthesia for this surgery - patch behind my ear, gas, and IV. I woke up extremely tired, and in a lot of pain. Pain meds are a MUST for recovery. I have to wear a drain for 7-10 days (which I'm still wearing as I write this) to drain the incision of excess fluids. The incision is swollen and black and blue, which feels like a rock in your side. I have nerve damage on the under side of my upper left arm, but the surgeon says the nerves will heal in time. I will need physical therapy to regain control and mobility of my left arm. The drain makes recovery especially painful for this surgery. I've dealt with nausea and sharp pains from the pull on my muscles/nerves in recovery. Massaging my arm has helped immensely!

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
  6. 6
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
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    Pain medicine

    Drug or Chemo Therapy

    Been on oxycodone (aka Perkiset) for almost a whole month now - the month includes two surgeries. Lately I've had some nausea, and I've been trying to take it only at night which has helped. I get some fatigue and "spacey-ness" from it.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  7. 7
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
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    Depression medicine

    Drug or Chemo Therapy

    Lexapro (5mg) - I'm about to start immunotherapy on Intron A (aka Interferon) for one year, so I'm taking Lexapro. It's mostly for anxiety at the moment as I'm not depressed right now, but it is a side effect of Intron A.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  8. 8
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    about 4 years ago
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    Which treatment to choose

    Decision Point

    I chose Interferon - the one year option. Intron A for the first four weeks, then half dose for 11 months.

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  9. 9
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    about 4 years ago
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    Immunotherapy

    Drug or Chemo Therapy

    Interferon...... side effects are terrible. High fever, nausea, fatigue, aches/pains.

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  10. 10
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
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    Hair loss (alopecia)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  11. 11
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
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    Cancer has spread/Metastasized

    Oh No

    Not 100% sure, but my scans revealed two nodes in my lungs - not sure if they are cancer yet. Too small to biopsy yet.

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  12. 12
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
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    Finished treatment

    Celebration

    This person has yet to add any details about this experience.

    0 Comments
  13. 13
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
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    Remission

    Celebration

    Mass in right lung is gone!

    1 Comment
  14. 14
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    5 months ago
    KRBaum's Avatar

    Immunotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  15. 15
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    5 months ago
    KRBaum's Avatar

    Cancer is back/Recurred

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  16. 16
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    5 months ago
    KRBaum's Avatar

    Cancer has spread/Metastasized

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  17. 17
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    5 months ago
    KRBaum's Avatar

    anti-LAG3 monoclonal antibodies and Nivolumab

    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
  18. 18
    • KRBaum
    • Experience with Skin Cancer - Melanoma
    5 months ago
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    autoimmune meningitis

    Side Effects

    Was inpatient for four days.

    0 Comments