marym's Journey with Intraocular Melanoma (also called Mel...

Caregiver: Eye Cancer > Intraocular Melanoma (also called Melanoma of the Eye)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 38

  1. 1
    • marym
    • Experience with Intraocular Melanoma (al...
    almost 5 years ago
    marym's Avatar

    Cancer has spread/Metastasized

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  2. 2
    • marym
    • Experience with Intraocular Melanoma (al...
    almost 5 years ago
    marym's Avatar

    Surgery

    Procedure or Surgery

    Surgeon removed part of brain tumor. Required radiation and a second brain surgery which was done by a different surgeon at another facility specializing in brain cancer.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • marym
    • Experience with Intraocular Melanoma (al...
    almost 5 years ago
    marym's Avatar

    Internal radiation

    Radiation

    Unpleasant at the least during the experience; radiation was a fearful partner with brain surgery following the anxiety of diagnosis.

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • marym
    • Experience with Intraocular Melanoma (al...
    almost 5 years ago
    marym's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Radiation for brain tumor was followed by chemotherapy that began on the last day of radiation. First chemo was painful; later, a port was put into the chest for future treatments. Chemo was prescribed every three weeks to fight liver cancer. Side effects are hair loss,fatigue and nausea.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  5. 5
    • marym
    • Experience with Intraocular Melanoma (al...
    almost 5 years ago
    marym's Avatar

    Hair loss (alopecia)

    Side Effects

    Chemo brain, hair loss, fatigue, neutropenia, memory changes, mood changes.

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  6. 6
    • marym
    • Experience with Intraocular Melanoma (al...
    almost 5 years ago
    marym's Avatar

    coming home

    Celebration

    Staying with parents who are helping take care of three children under the age of 5.

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