Nursnana's Journey:

Patient: Gallbladder Cancer

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: about 5 years ago, Female, Age: 68

  1. 1
    • Nursnana
    • Experience with Gallbladder Cancer
    almost 5 years ago
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    Diagnosed

    Oh No

    Oh No, I had no idea you could get gallbladder cancer!

    0 Comments
  2. 2
    • Nursnana
    • Experience with Gallbladder Cancer
    almost 5 years ago
  3. 3
    • Nursnana
    • Experience with Gallbladder Cancer
    almost 5 years ago
    Nursnana's Avatar

    Surgery

    Procedure or Surgery

    Surgery will be on October 29, 2012......8 weeks after gallbladder surgery.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    2 Comments
  4. 4
    • Nursnana
    • Experience with Gallbladder Cancer
    almost 5 years ago
    Nursnana's Avatar

    Surgery

    Procedure or Surgery

    The surgery to remove a liver sample and all the lymph nodes in that area took 5 hours. It went well, with the normal amount of discomfort from abdominal surgery. The chief resident removed my staples on the fourth day, and discharged me from the hospital. I think the staples were removed too soon. I had my gall bladder surgery in late August, and my staples stayed in for several weeks. The day after I came home from the liver/lymph node surgery my incision start draining and I was having a lot of pain. I called the doctors nurse and she did not seem too concerned. The next day the pain and drainage was worse. I called the attending on call, and he didn't seem concerned either. It was a weekend, and I was told to call my doctor on Monday. On Sunday I was so sick and in so much pain I went to our local ER, and was told I had a bad wound infection. My white count was 20,000. I was transferred by ambulance to UVA Hospital to be admitted by my oncology surgeon. The treatment was lots of IV antibiotics, and I had to have a drainage tube inserted. My surgical incision opened up and continued to drain. They started wet to dry dressings. It is so painful to have an open incision packed with gauze. After four days of treatment for infection, I was releases from the hospital. I have home health nurses coming in to check on me, and to change and repack the wound. My husband does the dressing changes when the nurses do not come. I am still having a lot of pain when the dressing is changed. I take a pain pill before each dressing change. I have an appointment with my surgeon next Tuesday, hoping I can get the tube out. The good news...... the Pathologist found no cancer in my liver or my lymph nodes! I am very thankful. I know that I may end up having chemo and radiation when I am healed. I can only deal with one day at a time. I am not worried about what happens next.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    3 Comments
  5. 5
    • Nursnana
    • Experience with Gallbladder Cancer
    almost 5 years ago
    Nursnana's Avatar

    1st Oncologist visit!

    Celebration

    What a blessing! It looks like I will probably not need chemo or radiation. The oncologist thinks the cancer was caught early and it was only in my gall bladder. He did send off my blood for a CA 19-9. So, he can't say for certain till he gets the results. We really liked this doctor, he spent almost 2 hours with me. He wants me to come back in February. He said I will be monitored closely. Thank you Lord!

    1 Comment
  6. 6
    • Nursnana
    • Experience with Gallbladder Cancer
    almost 5 years ago
    Nursnana's Avatar

    Chemo?

    Decision Point

    My Oncologist called me, the first thing he told me was I am quite anemic. He ordered a prescription for Iron. He then said he wanted me to come in so he could discuss chemo with me. He said I can go without it, or may decide to take the chemo. He wants to explain the pros and cons with me on January 7th. What changed his mind was I am a Stage 2 and you have a choice about chemo. I think he wanted to do the calculating himself to determine what stage I was. The surgeon had already told me I was a Stage 2. So, right now I am leaning toward getting it. However, I will be interested to hear what he has to say on Jan.7th.

    1 Comment
  7. 7
    • Nursnana
    • Experience with Gallbladder Cancer
    over 4 years ago
    Nursnana's Avatar

    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  8. 8
    • Nursnana
    • Experience with Gallbladder Cancer
    over 4 years ago
    Nursnana's Avatar

    Port

    Procedure or Surgery

    We had to get up at 5 am today to go to the hospital for me to have my Port placed in my upper chest. The procedure went well and we were on our way home before noon. My first chemo treatment is next Tuesday.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  9. 9
    • Nursnana
    • Experience with Gallbladder Cancer
    over 4 years ago
    Nursnana's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemotherapy has been harder than I expected so far. I am in my 3rd week and have had numerous side effects and have just felt sick almost everyday. ugh I am a tough old bird and I will get through this! I am taking it one day at a time, and trusting God.

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    1 Comment
  10. 10
    • Nursnana
    • Experience with Gallbladder Cancer
    over 4 years ago
    Nursnana's Avatar

    Finished treatment

    Celebration

    I finished my Chemotherapy! I will see my oncologist late April, and probably get another CT Scan. I am starting to perk up, and do things I enjoy! My journey lasted 7 months. God has been with me every minute. I'm grateful to be ALIVE!

    2 Comments
  11. 11
    • Nursnana
    • Experience with Gallbladder Cancer
    over 4 years ago
    Nursnana's Avatar

    Finished treatment

    Celebration

    My CT scan was negative for cancer, no more treatment necessary! My oncologist said I will have another CT scan in 3 months. If that one is negative, it will be a matter of wait and see what happens. Gallbladder cancer can have a recurrence. The oncologist did say if it comes back, it will not be curable. It will be treated as a chronic disease. I appreciate his honesty. I am grateful for each day! The only chemo related symptom that hangs on is fatigue. Some days I am just too exhausted to get anything done. Other days I am able to do more. I am trying to be patient with this lack of energy. I feel like my body is slowly healing from all that has happened to me during my cancer treatment. The things I have enjoyed doing are simple things. I can enjoy visits with our wonderful children and seven grandchildren! I can go to church now! My church family has prayed for me for months and months. They welcomed me back with open arms! I can go out again with my friends. I can go on long country drives with my husband, or to our beloved Blue Ridge Mountains. I can once again go shopping!! Since it was cold and flu season, I had to stay away from crowds. I felt like I was hibernating in our home! It is so nice to get out again! I will continue to enjoy each day, life is a precious gift from God! I am so thankful God was with me throughout my journey. ❤ Many thanks to the What's Next community of friends. I was so blessed to find this wonderful group of supportive friends. ~hugs~ Nancy

    1 Comment