Mom007's Journey with Multiple Myeloma

Patient: Multiple Myeloma

Patient Info: Prefer not to answer/not applicable/unsure, Diagnosed: over 5 years ago, Female, Age: 53

  1. 1
    • Mom007
    • Experience with Multiple Myeloma
    almost 5 years ago
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    Diagnosed

    Oh No

    3 broken vertebrate and 3 emergency room visits before 2 week hospitalization and diagnosis of late stage 2.

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  2. 2
    • Mom007
    • Experience with Multiple Myeloma
    almost 5 years ago
    Mom007's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    It is hardest when your cognitive ability is affected. Other side effects, like pain discomfort, night-sweats etc. can be dealt with through adjustments in your previous routines.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • Mom007
    • Experience with Multiple Myeloma
    almost 5 years ago
    Mom007's Avatar

    Stem-cell transplant followed by heavy chemo

    Procedure or Surgery

    Had an excellent medical experience at Yale New haven Hospital! Was hospitalized for 2 weeks, after a few days of outpatient stem cell retrieval. After being released is when I had complications with a GI infection and liver compromise from a prevention antibiotic.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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  4. 4
    • Mom007
    • Experience with Multiple Myeloma
    almost 5 years ago
    Mom007's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    Have monthly Zometa. Side effects are hot flashes and night-sweats, and sleep issues. Will be talking to my doctor about discontinuing.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    • Mom007
    • Experience with Multiple Myeloma
    almost 5 years ago
    Mom007's Avatar

    Will begin low dose of Revlimed in 2 weeks

    Drug or Chemo Therapy

    When this was combined with the steroid chem, I was strongly effected with side effects. My doctor assures me, with the low dose I am starting, I will not experience the extreme depression, night sweats and confusion. Lets hope so...

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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