RonV's Journey:

Patient: Liver Cancer

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Male, Stage IV

  1. 1
    • RonV
    • Experience with Liver Cancer
    over 4 years ago
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    Partial liver removal

    Procedure or Surgery

    3 years no return to the liver

    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. 2
    • RonV
    • Experience with Liver Cancer
    over 4 years ago
    RonV's Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  3. 3
    • RonV
    • Experience with Liver Cancer
    over 4 years ago
    RonV's Avatar

    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
  4. 4
    • RonV
    • Experience with Liver Cancer
    over 4 years ago
    RonV's Avatar

    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
  5. 5
    • RonV
    • Experience with Liver Cancer
    over 4 years ago
    RonV's Avatar

    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    • RonV
    • Experience with Liver Cancer
    about 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Nexavar...worked for 6 months and then stpped, lots of side affects

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  7. 7
    • RonV
    • Experience with Liver Cancer
    about 4 years ago
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    3 drug types from chemo to hormones

    Clinical Trial

    all 3 failed

    0 Comments
  8. 8
    • RonV
    • Experience with Liver Cancer
    about 4 years ago
    RonV's Avatar

    nanoknife for removal of two tumers

    Decision Point

    several Dr's are againts any surgery or radiation two cancer centers refused to perform the proceedures stated they will hurry death. Sylvester will do a nanoknife and the thought is no tissue damage or blood so it should be safe, yet only a couple have been performed at the adrenal glands and the nanoknife has only been approved for 2 years so far.

    0 Comments
  9. 9
    • RonV
    • Experience with Liver Cancer
    about 4 years ago
    RonV's Avatar

    spiritual

    Other Care

    As a taoist my freedom from the physical has kept me from relating and identifying with this cancer. It keeps us apart and helps me to remain the stronger.

    0 Comments
  10. 10
    • RonV
    • Experience with Liver Cancer
    over 3 years ago
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    nano knife

    Procedure or Surgery

    This is the only thing available for tumors that have metastasized in the adrenal glands

    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  11. 11
    • RonV
    • Experience with Liver Cancer
    over 3 years ago
    RonV's Avatar

    blind study phase 3

    Clinical Trial

    got the placebo even though the drug worked for another person they will not allow crossover

    0 Comments
  12. 12
    • RonV
    • Experience with Liver Cancer
    over 3 years ago
    RonV's Avatar

    Blood sugar, high (diabetes)

    Side Effects

    The drug from a trial resulted in my becoming diabetic

    1 Comment
  13. 13
    • RonV
    • Experience with Liver Cancer
    over 3 years ago
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    Loss

    This person has yet to add any details about this experience.

    0 Comments
  14. 14
    • RonV
    • Experience with Liver Cancer
    over 3 years ago
    RonV's Avatar

    Decision Point

    This person has yet to add any details about this experience.

    0 Comments
  15. 15
    • RonV
    • Experience with Liver Cancer
    over 3 years ago
    RonV's Avatar

    my wife is a nurse and did the research fro clinical trials that I could not have done or understood

    Other Care

    This person has yet to add any details about this experience.

    0 Comments