cancersucks4us' Journey with Skin Cancer - Melanoma

Patient: Skin Cancer - Melanoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 6 years ago, Female, Age: 55, Stage IV, BRAF mutation positive: Yes, c-kit positive: Don't Know

  1. 1
    about 5 years ago
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    Cancer has spread/Metastasized

    Oh No

    Was first diagnosed with cancer late in 1999, received treatments for over 1year during which time had two major surgeries as well as extreme bouts of near death experiences. Went into remission for almost 5 years, then it came back in 2011 like a hurricane spreading from my right side to my left w/tumors everywhere that were maintaining their new home in my internal organs and growing rapidly. W/out treatment, was given two months to live.

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  2. 2
    about 5 years ago
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    Full lymph node dissection

    Procedure or Surgery

    In the earlier years with my disease and surgery (2000), 18 lymph nodes were removed from my right groin area extending into my upper thigh area. All were cancerous and I was hospitalized for one week and sent home. Contracted gange green in area that was operated on and had to have wounds packed several times a day to extract this from my affected area before entering my blood stream and poisioning me. Next surgery (2011) was less invasive, but tumor was showing on outside of body and not detected until showing. This surgery was completed quickly and recovery time much easier due to new laser techniques and such. Had another surgery to remove lymph node infected under left arm...nodule closest to lymph nodes in breast area. Breast wasnt affected thank God.

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    about 5 years ago
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    Chemotherapy and immunotherapy combined (biochemotherapy)

    Drug or Chemo Therapy

    First chemotherapy treatments (2000) interfuron.....very harsh treatments of daily injections for 30 days.....they called it aggressive treatment. Completely harsh side effects from vomiting routinely, dehydrations, completely out of it for months. Second (2011) clinical trail drugs after being told could not take interfuron twice in lifetime.....Luckily, all of my tests and many prayers created a spot for me in the trial program because my body had been able to pass every test they gave me for the requirements of trial FDA, non-approved medicines.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    about 5 years ago
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    Am still receiving Melanoma clinical trial drugs from reputable federally approved facility.

    Clinical Trial

    Very iffy to explain all my experiences due to the processes going through continually. The trial program is a great way to help yourself, help others, and the staff is great. The doctors do care more probably, because you are helping them to create their own determinations of newly innovative drugs.

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  5. 5
    about 5 years ago
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    Other

    Side Effects

    Side affects of the drugs I am on, vary from person to person as with all drugs. Mine have gone from extreme swelling and fevers with flu like symptoms to light and moderate pain, dehydration, and loss of any interest in sex. These depend on the amount of therapy given and the symptoms decrease when the treatment amounts are lowered while still maintaing a level of drug for your body to keep the tumors in a low state of what some people call, remissions.

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  6. 6
    about 5 years ago
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    Cancer is shrinking

    Celebration

    Yahoo!!!! My latest ct scans revealed shrinkage of tumors by 98%.....they will lay dormate, but never go away since this is my second time but I am looking forward to many more years with my family. This can only be maintained however, with the drugs I am currently taking in the dosages that have been stabilized for me to live a semi-normal lifestyle, but with restrictions due to health unstability. Still, up and walking around and not stationary anymore and def not six feet under!!! Doing the best I can, but now we have to talk about the stuff that happens to you when you survive.....defeating the government is my newest challenge. THEY HAVE CANCELLED THE ONLY INSURANCE THAT I HAVE FOR NOW!! Well, guess I will have to live to XXX them off!! Any help from a willing participant would be greatly appreciated though, just in case they change their minds and cancel my only way to life currently, the clinical trial. Meanwhile, my daughter and I live on limited income, and I mean for a very limited income, but in a category where it is still a struggle....my teenage daughter has been here with me through all of this and maintained her great gpa and worked to help us since we have been cut from alot of aid that we were receiving because they say we make to much? Anyway, we are still here and I am hoping to write a book and maybe be able to get my daughter and my older children and grandchild things that they have deserved or at least leave them with something. I am trying to buy my house currently.....hopefully they will approve me!

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