stillhere's Journey with Invasive Lobular Carcinoma

Patient: Breast Cancer > Invasive Lobular Carcinoma

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: almost 7 years ago, Female, Age: 65, Stage IV, HER2 Positive: Don't Know, ER Positive: Yes, PR Positive: Don't Know

  1. 1
    • stillhere
    • Experience with Invasive Lobular Car...
    almost 5 years ago
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    Cancer has spread/Metastasized

    Oh No

    I was diagnosed with breast cancer, small lump, early stage on 10/15/2010. Exactly one month later I learned it had metastasized to my bones. Spine, ribs, sternum, pelvis and skull. I was in shock.

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  2. 2
    • stillhere
    • Experience with Invasive Lobular Car...
    almost 5 years ago
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    Lumpectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    • stillhere
    • Experience with Invasive Lobular Car...
    almost 5 years ago
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    Port Implant

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  4. 4
    • stillhere
    • Experience with Invasive Lobular Car...
    almost 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    • stillhere
    • Experience with Invasive Lobular Car...
    almost 5 years ago
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    External radiation

    Radiation

    My life was completely changed after my first radiation and high dose chemo treatments (both on the same day). The nerves in my spine were severely affected causing so much pain and weakness in my legs and pelvis that could not bend at the waist, so sitting and walking became most difficult. I became an invalid overnight almost, went from a pretty active life style to almost nothing. This last for 4 months. Thankfully that is all behind me now and I'm back to being able to get around and do most anything.

    Painless Experience: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  6. 6
    • stillhere
    • Experience with Invasive Lobular Car...
    almost 5 years ago
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    Nerve damage (peripheral neuropathy)

    Side Effects

    Also damaged nerves in my spine which caused me excruciating pain whenever I bent at the waist, tried to sit or stand. Was in extreme pain and confined to bed for 5 months. Getting to and from my daily treatments was unbearable some days. My husband cared for me day and night, without his constant attention I would not have been able to stay at home during this time.

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  7. 7
    • stillhere
    • Experience with Invasive Lobular Car...
    almost 5 years ago
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    Anniversary

    Celebration

    Two years since my initial diagnosis on October 15.

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  8. 8
    • stillhere
    • Experience with Invasive Lobular Car...
    almost 5 years ago
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    Cancer is shrinking

    Celebration

    This person has yet to add any details about this experience.

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  9. 9
    • stillhere
    • Experience with Invasive Lobular Car...
    almost 5 years ago
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    Decision Point

    This person has yet to add any details about this experience.

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