jordang's Journey with Multiple Myeloma

Survivor: Multiple Myeloma

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 14 years ago, Male, Age: 67

  1. 1
    • jordang
    • Experience with Multiple Myeloma
    almost 5 years ago
    jordang's Avatar

    Diagnosed

    Oh No

    I was diagnosed when my back collapses in several places putting me into intense pain and disability.

    0 Comments
  2. 2
    • jordang
    • Experience with Multiple Myeloma
    almost 5 years ago
    jordang's Avatar

    Surgery

    Procedure or Surgery

    The doctor used Kypoplasty to glue my back together. Later I had surgery to put a rod into my neck to repair it. I now have a normal life, with some ongoing back pain and limited neck mobility.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  3. 3
    • jordang
    • Experience with Multiple Myeloma
    almost 5 years ago
    jordang's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I had about a year of intense chem, with stem cell transplant which I prefer to call stem cell rescue It was hard but I made it through with great support for family and the cancer center that I went to..

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. 4
    • jordang
    • Experience with Multiple Myeloma
    almost 5 years ago
    jordang's Avatar

    Thylidomide

    Clinical Trial

    This was a help. I was a early tester and the dose was too much and it caused neuropathy in my feet and hands which I have to live with.

    0 Comments
  5. 5
    • jordang
    • Experience with Multiple Myeloma
    almost 5 years ago
    jordang's Avatar

    Remission

    Celebration

    I have been mostly in remission for 8 years now. The cancer is still there and new drugs have kept it at bay. I live a active life, working full time, and have a full family life.

    1 Comment