jeanne's Journey with Lung Carcinoid Tumor

Survivor: Lung Carcinoid Tumor

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 7 years ago, Female, Age: 74

  1. 1
    • jeanne
    • Experience with Lung Carcinoid Tumor
    almost 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    was surprised to hear the diagnosis as I thought I had a collasped lung. Began aggressive chemo right away with radiation soon a I got out of hospital 5 days later. first treatment was still in controll. Soon to deteriorate after second round of chemo. Had to get hydrated twice and finally ended up back in hospital with very low white blood count. Another 5 days in hospital. Very sick for the next three rounds. Had to have feeding tube inserted as throat closed up from radiation. Tube did not work that well. Back to hospital to get blood and plasma transfusion. Two more times this had to be done. Finally got to eat small amounts, liquids first then soft food. Jevity was supposed to help my stregnth. Had to mash up meds and feed to the tube. Messy as it would tune to powder when mixed with water. Soon as I could swallow a pill things got better. Home health care came to assist me. Long process as it didn't get better until they changed the dose of chemo. took almost half a year to get anything I could taste or wanted to eat. Gaspacho soup was the first food to have any flavor. The more I could eat the better I got. Got clearance on May 20th 2011. No evedence of cancer. Praise God. Year later had to go in for Cyber Knife surgery for a small spot on the Adrenal gland. Nice experience as I felt nothing and that too is gone. Thanks for the prayer chain from my church, all my friends and support from my family. Made up a scrape book of my experiences to share with anyone to help them cope. Wish all would go as mine did . Not done totally as still having side effects. But I'll take it. God 's will be done. I will pray for you as my God is good.

    Easy to Do: Not Specified
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    • jeanne
    • Experience with Lung Carcinoid Tumor
    almost 5 years ago
    jeanne's Avatar

    Radiation

    Radiation was not my best experiece as I got burns to my chest and head. Had 36 treatments to chest and 32 to my head as they felt it might migrate should I not have it done.Took a long time to get my hair back as I had to scrape off the scabs so the hair could come through. Baldness is not my best look but my friends said I had a nice shaped head. Still have shooting pains and sore areas a year later. But hair is coming back not like what everyone said (thicker and curly) Pin straight. But it is hair!

    Painless Experience: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • jeanne
    • Experience with Lung Carcinoid Tumor
    almost 5 years ago
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    My mind/Sense of Humor

    Loss

    Memory went down the tubes. Have hard time finding the word I want to say. Sometime things come out that I wasn't trying to save. That is getting better after a year. Lost 54 lbs total which was okay by me as it was not coming off any other way. Could eat anything with out gaining. But doesn't last forever. Since chemo drugs worked out of my system in is creeping back on. Was good for awhile.

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  4. 4
    • jeanne
    • Experience with Lung Carcinoid Tumor
    almost 5 years ago
    jeanne's Avatar

    Procedure or Surgery

    One of the best treatments to have if the cancer is caught soon enough. Strongly recommend it.

    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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