trigger552's Journey with Bladder Cancer

Survivor: Bladder Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Male, Age: 58, Stage I

  1. 1
    over 4 years ago
    trigger552's Avatar

    Diagnosed

    Oh No

    When I was originally diagnosed I was over 600 miles from home. After passing 2 huge blood clots I went to the nearest hospital and was informed after 8 hrs that I my bladder was full of cancer cells and they wanted to do the surgery right then.I told them thanks but I needed time to contact my family and process what was going on. I notified my dispatcher of what had just happened and they found me a load to get me home.Telling my family was the easy part. coming to grip with what I had was the hard part. I got home Friday and it was the following tues that I got in to see a urologist. In my mind I was falling apart but I had to carry on. We had lost our truck during the tornado's that came thru, so Saturday we went to the dealership and bought another one on the spot. I had no idea how long I would have, whether I would even be able to go back to work again. On Tues, the urologist assured me he would have me up and running again in about 3 weeks. No big deal. Even his assurance did nothing to allay my fears.

    0 Comments
  2. 2
    over 4 years ago
    trigger552's Avatar

    Whether or not to let The Urologist go back in for a second try.

    Decision Point

    The first time the Doctor went into get the cancer out, he nicked my bladder and my colon but did not say anything. Just told me there was too much blood to see what he was doing and he was going to send me home. I never left the hospital. I could not urinate so they kept me. 2 days later the Doctor came to see and asked me the strangest question I have ever been asked by a Doctor. At the time, If I had not been so doped up I would have realized what my wife was trying to get me to understand. The question he asked me was " Do you trust me to go back in and try to get the Cancer out" Had I been in my right mind I would have asked him the Question " Do you trust yourself to go back in." I told him to go for it never thinking why he was asking. I just wanted it all over with so I could get my life back. My wife, on the other hand, did not want him to do it for reasons I did not understand at the time. My wife had talked to one of the nurses that was in Surgery and told my wife just how bad the Doctor messed up. In my fogged mind I thought the longer I let it go the bigger my chance of dying. Little did I know that the decision I made that day, set the stage for the most terrifying 6 weeks for my wife and family. When he went in the first time and nicked both my Bladder and Colon, he set the stage for an infection that should have killed me and almost did. Feces had slipped into my bladder and when they went in the second time I died on the table. Once they got me back, I developed renal failure and was put into a medically induced coma so I could receive 24/7 Dialysis.My doctor called in a staff Surgeon to do a colostomy on me and then HE WENT ON VACATION!!!!! Never said a word to my wife. Left it all up to the staff surgeon to to tell the story. That staff Surgeon and My Kidney doctor are the one's I owe my life too. Without them I would not be alive today to tell my story.

    0 Comments
  3. 3
    over 4 years ago
    trigger552's Avatar

    Surgery

    Procedure or Surgery

    Thanks to My doctors incompetence I laid in a coma for six weeks with an Ostomy bag on my stomach and a catheter. When I finally woke up ans was told I still had the Cancer I was totally destroyed. I cannot believe All that I went thru and still have the Cancer in me. The Staff Surgeon told my wife to prepare for the worst right off the bat. The Kidney doctor told her that when someone goes into Renal failure like I did it was a real good possibilty that I would never get my kidneys back full strength. My Wife and God above had other Ideas. My kidneys came back stronger then they were before and I never had Dialysis Once I was brought out of my Coma. The problem was I still had the Cancer and my wife, trying to make things right never told me what happened until later.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 4
    over 4 years ago
    trigger552's Avatar

    Long-term catheter

    Procedure or Surgery

    After almost 3 months I was released from the Hospital. I was so weak I had to be carried into and out of my house. I got no rehab while in the hospital. I went to see the Urologist a couple of days later. I was using a walker but having to rebuild my strength again it was a long and painful trip. I looked the man in the eye and asked him if he had ever lost a patient to bladder Cancer. In 29 yrs He honestly believed I was gonna be his first. That's when he told me that he was passing me off to another Doctor in Birmingham who would complete my surgery but until I got my strength back it would have to wait. I asked him to remove the Catheter but was told since the Cancer was still there a catheter was for the best.This was in July of 2012. In Sept I finally saw the Specialist in Birmingham and surgery was scheduled.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  5. 5
    over 4 years ago
    trigger552's Avatar

    Surgery

    Procedure or Surgery

    I went into the Hospital in Birmingham in Sept and finally the cancer was removed from my body. I was ecstatic. The Doctor told me after surgery that it was the easiest one he had done and had gotten everything out that was there. When I asked about the Catheter he said to wait and make sure it takes before we consider taking it out. When I asked him about the Ostomy bag he said lets wait and see. After all I had been thru, a few more weeks would not matter. Within 24 hrs I was home again and getting stronger by the day. I had home health come out 3 times a week for rehab and told them to push me as hard as they could and never let me give up. True to their word they didn't. If not for the Catheter and Ostomy bag I would have felt like a new man.

    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  6. 6
    over 4 years ago
    trigger552's Avatar

    BCG directly into my Bladder.

    Drug or Chemo Therapy

    After my initial Colonoscopy I was set up for 6 weeks of Chemo. They would pull my catheter out, Insert another, fill my bladder with BCG and put in another catheter and send me home.After that 6 treatments I waited 3 months then go in for another colonoscopy. NOTHING. The cancer was gone.Now the fun begins. Even though the Cancer is gone I have to go through Maintence chemo. # weeks of treatment and wait 3 months for another colonoscopy. After the second colonoscopy I was finally able to remove the Catheter for good.The Ostomy bag on the other hand was a different story. I finally got my Family Doctor to refer me to the same Doctor who put it on and see what he thought. He gave the green light for it to go provided everything looked good. 1 year to the day he put the bag on, He took it off. Praise God

    Easy to Do: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  7. 7
    over 4 years ago
    trigger552's Avatar

    Fatigue (tiredness)

    Side Effects

    Once I started the BCG the effects were minimal at best. Usually the first 24hrs I sleep alot but then it's back to life as usual. Thank God that my treatment is local and not injected through the blood or it might be a lot worse then it has been.

    0 Comments
  8. 8
    over 4 years ago
    trigger552's Avatar

    The Cancer is gone but the BCG continues.

    Celebration

    I have had 6 cystoscopies now and The Cancer is still gone. How many more rounds I have left I have no idea. I am not quite 100% yet but close enough for me. I have went from almost dying in the operating room to full freedom again. I am still on Disability and will be until the Doctor tells me different but there is nothing I cannot do today that I could not do before all Of this. My wife never once believed she would lose me and The Good Lord never gave up on me and here I am. I never had a chance to give up on me and wouldn't even if I could have. Life is too short and Family too precious to ever give up on life.

    0 Comments
  9. 9
    over 4 years ago
    trigger552's Avatar

    Home care

    Other Care

    I would like to thank my home health folks for helping me get through all of this. Without them I don't think my recovery would have been as quick as it was. As much Grief as I gave them they never gave up on me. Any questions I had, they answered honestly and made me feel like they really cared and you know what? I know they did. Thank you to all the fine people at AlaCare Home health

    1 Comment