Francesanne's Journey with Medulloblastoma

Caregiver: Brain and Spinal Cord Tumors in Adults > Medulloblastoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Male, Age: 28

  1. 1
    over 4 years ago
    Francesanne's Avatar

    Diagnosed

    Oh No

    Son was worked up for possible vertigo, BPPV, going to therapy for that, therapy not working, then had MRI and diagnosed with tumor

    0 Comments
  2. 2
    over 4 years ago
    Francesanne's Avatar

    Surgery

    Procedure or Surgery

    Originally thought it was a pilocytic astrocytoma, during surgery discovered it was cancerous and then after finding out pathology of medulloblastoma. They believe from MRI all of the tumor was resected.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  3. 3
    over 4 years ago
    Francesanne's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Will be having chem after radiation, not sure yet what type

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  4. 4
    over 4 years ago
    Francesanne's Avatar

    External radiation

    Radiation

    Is about to start the fourth week of radiation with three weeks and two days left. Radiation five days a week. Side effects so far include tiredness, beginning of hair loss, some loss of taste, stomach discomfort (although could be from Decadron)

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    2 Comments