itsjustme736's Journey with Inflammatory Breast Cancer

Patient: Breast Cancer > Inflammatory Breast Cancer

Patient Info: Diagnosed: about 5 years ago, Female, Age: 56, Stage IV, HER2 Positive: Yes

  1. 1
    over 4 years ago
    itsjustme736's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    My Powerport was put in October 2012 everyone should get this. You will not feel like a pin cushions

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  2. 2
    over 4 years ago
    itsjustme736's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I started chemo in Oct. 2012 for the IBC StageIV I was put on Taxotere,Cytoxan and Herceptin. Every 3 weeks.8:30 to about 1:30 No problem receiving Chemo had a Power port. But hold on later that night. For about the first 3 treatment restlessness, would have to sleep 2 hours in the bed, 2 hours in the recliner allnight for about 4 or 5 days Then it would stop.Next morning acid reflux.Sometime I would just feel bad and would just set in a recliner with a pillow until the emotion pass. Diarrhea some of the nastest taste would come in your mouth. Had to change some brands of food just could stand the taste.Didn't throw up that much just felt bad.For a good while about the only comfort food at breakfast was orange juice,grits and eggs

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    over 4 years ago
    itsjustme736's Avatar

    Hair loss (alopecia)

    Side Effects

    The hair loss is very stressful but you will ajust it is harder if you were use to long hair. I put a scarve on by head at night as long as I could then after a couple of weeks you will notice that you a lossing the battle. I just cut one spot on my hair and a slight pull and it came straight out no pain at all.It was a bout 3 weeks before I get my nerve up to wash it in the shower.So now I just shampoo my head dry off and put regular hair grease on pick a wig.I have about 10 now so I can be anyone that I want to. All different color and length....... Finger nails look like a washboard with black and white streaks,fingers turn black... Eyes watering, dry mouth,Black spots on back. The only thing that you might like is not having to shave at all. It has been a little over six months now I have been taken off two of my chemo drugs but will have to stay on one. Things have started to go back to normal. A little hair has started coming back. But I feel good, the Chemo did work and I will still have to have Surgery in June so I will keep faith that everything will go alright

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  4. 4
    over 4 years ago
    itsjustme736's Avatar

    Mastectomy

    Procedure or Surgery

    Had Mastectomy on June 18 2013 went to hospital that morning had IV put in arm and Numping cream put on breast they put 5 needle in the breast kind of hurt a little but not real bad. They said I did good. When I woke up it was over I felt very good. Order my dinner and went home the next morning. I thought I would have more to tell you but, I don't remember a thing. Must have been some good drugs. On June 23 2013 Tubes and staples removed feel a lot better only have one spot under arms that a little sore. Had check up on June 27 healing well. Have four weeks to heal then I will have to started on my Radiation Journey. Here we go again!

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  5. 5
    about 4 years ago
    itsjustme736's Avatar

    External radiation

    Radiation

    I will need to have 28 treatments 26 more left so far so good. I have 10 more days left in radiation, Have felt very sleepy off and on. A little burn feeling in spots sometime it want be long now

    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  6. 6
    about 1 year ago
    itsjustme736's Avatar

    Cancer has spread/Metastasized

    Oh No

    After my radiation journey in 2013 I was only having to take Herceptin. Then in October 2014 spots had show up on my back. I would have to started back on the the hardcore Chemo again Perjeta,Taxotere,Herceptin and Zometa The first treatment was bad mouth sores,infection and radiation flare up. Now that was something to deal with all at one time along with the bile moving 5 or 6 times a day. The next month they wanted to to do it again but, I told the Dr. that she would have to decided which one of these drugs would have to be given at the same time. Because I would have to get the treatment in two session instead of all at one time. So for about a year I went twice a month to get chemo and started to feel much better. In 2015 every thing is showing up clear I have been taking off of Taxotere and my hair is trying to come back now. I feel so much better sometime it scare me to feel normal. God is Good and I 'm bless

    1 Comment
  7. 7
    about 1 year ago
    itsjustme736's Avatar

    Anniversary

    Celebration

    This September 2016 I will be a 4 year Cancer Survior I'm still on chemo but doing great, knock on wood. With the help of my family and friends to keep my spirits up. Enjoying the New Normal because once you started on Chemo your body will never be the same. But you are still living and you are blessed. Just trust in the lord and he will guide along the way

    2 Comments