webean03's Journey:

Survivor: Adrenal Cortical Cancer (Adrenal Cortex Carcinoma)

Patient Info: Prefer not to answer/not applicable/unsure, Diagnosed: over 20 years ago, Female, Age: 36

  1. 1
    • webean03
    • Experience with Adrenal Cortical Canc...
    almost 5 years ago
    webean03's Avatar

    Fatigue (tiredness)

    Side Effects

    I was misdiagnosed with mono, I was tired, dizzy, blurred vision, just didn’t feel good. I went back saw a different Doctor, and he felt my spleen sticking out of my ribs. I then was sent for a cat scan.

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  2. 2
    • webean03
    • Experience with Adrenal Cortical Canc...
    almost 5 years ago
    webean03's Avatar

    Misdiagnosed

    Oh No

    mono? NOPE

    1 Comment
  3. 3
    • webean03
    • Experience with Adrenal Cortical Canc...
    almost 5 years ago
    webean03's Avatar

    Surgery

    Procedure or Surgery

    They told me I had a large mass on my adrenal gland. They went to remove it. Found out it was a little bigger than a softball size. I was only 15 years old. A couple weeks later, I was called back into the doctor to find out that it was cancerous. They didn’t know this before they removed the tumor along with the adrenal gland.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • webean03
    • Experience with Adrenal Cortical Canc...
    almost 5 years ago
    webean03's Avatar

    High blood pressure (hypertension)

    Side Effects

    I have chronic pain ever since. I also have/had high blood pressure before and since.

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  5. 5
    • webean03
    • Experience with Adrenal Cortical Canc...
    almost 5 years ago
    webean03's Avatar

    Overly tired from stress.

    Side Effects

    To this day, I have a really hard time with any type of stress. I’m just wiped out from it? It’s been getting really bad throughout the years.

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  6. 6
    • webean03
    • Experience with Adrenal Cortical Canc...
    almost 5 years ago
    webean03's Avatar

    testing

    Other Care

    ever since the diagnosis of the Adrenal Cortical Carcinoma, I have had to sign lots of papers and have had tons of testing done. I was at Mayo Clinic in MN for years, but haven’t had any testing done in about 5 years now:( They stated I would never be “cancer free” due to the little known about my cancer.

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