papabill's Journey:

Patient: Colorectal (Colon) Cancer > Adenocarcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 6 years ago, Male, Age: 76, KRAS mutation positive: No, BRAF mutation positive: No, Stage IIIA

  1. 1
    • papabill
    • Experience with Adenocarcinoma, Color...
    almost 5 years ago
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    Removal of rectal tumor

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  2. 2
    • papabill
    • Experience with Adenocarcinoma, Color...
    almost 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I was diagnosed July 2011 rectum and two tumors in sigmoid colon. Had ileostomy for almost seven weeks before reversal and then 12 FolFox sessions - Oxaliplatin - chemo sessions after initially going through six weeks - pre-op - of 5FU and targeted radiation. Had Stage III colorectal (rectal carcinoma) cancer surgery in October 2011 followed by reversed iliostomy in December 2011 and began FolFox in February 2012. Completed August 2012. Thought I would make it through with minimal impact, but now at end --after sessions 11 and 12 -- have bowel issues that range from day or two of no activity to a day or so of hard to control constant activity with little breaks and fast runs back to bathroom most just make, few "too late." . Can occur during day and/or night. Night wore Depend for protection for several months. Was discouraging and embarrasing, especially when accompanied by gas attack in presence of others. Also experienced post-chemo neuropathy limited to toes, balls of feet and finger tips and a strange swollen feeling on bottom of feet. Feels like toes wrapped in duct tape and when walking feels as if on wooden planks attached to feet. No real pain, but discomfort. Advised to take Folic Acid, B-12, B-Complex, Alpha Lipoiic Acid for neuropathy (regenerate nerve damage) - after two years so far no changes - and metamusil 2x a day and 1/2-cap imodium for bowels as needed. Appreciate any insights, suggestions from similar comrades in this battle,especially to advise on how to improve situation, especially neuropathy. With appreciation, PapaBill

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    2 Comments
  3. 3
    • papabill
    • Experience with Adenocarcinoma, Color...
    almost 5 years ago
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    External radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  4. 4
    • papabill
    • Experience with Adenocarcinoma, Color...
    over 2 years ago
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    Oh No

    This person has yet to add any details about this experience.

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  5. 5
    • papabill
    • Experience with Adenocarcinoma, Color...
    almost 5 years ago
    papabill's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    Neuropathy effects feet and fingers. No pain, but discomfort when walking any distances. Toes feel like they are wrapped tightly in duct tape. Bottom of feet, not acrches, feel like I have wood attached so need to watch balance. Occurred after 10th of 12th round of FolFox. Oncologist stated could take a year or more to abate or in some instances can remain permenant. Hoping that the mylen - which protects the nerves and was destroyed by the chemo that exposes the nerves and causes the neuropathy will regenerate...sooner the better.

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