mamaj2012's Journey with Gastrointestinal Stromal Tumor (GIST)...

Patient: Stomach Cancer > Gastrointestinal Stromal Tumor (GIST)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Female, Age: 67, Stage IIB

  1. 1
    • mamaj2012
    • Experience with Gastrointestinal Str...
    over 4 years ago
    mamaj2012's Avatar

    Surgery

    Procedure or Surgery

    I was told my chances to survive this surgery were slim. But I made it. I was told that I will now have to be on a chemo called Gleevec for the next three years to protect the liver and pancreas. I am coping with that now. I am glad to have lived but struggling with all these changes going on in me. My family is to scared to let me vent without worrying themselves silly so I am turning to others who have made it through this to have (and give when I can ) a hearing ear.

    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  2. 2
    • mamaj2012
    • Experience with Gastrointestinal Str...
    over 4 years ago
    mamaj2012's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Some days I think how lucky I am to only have to take this "pill" to keep living . Other days I worry that this "pill " is a form of poison and I am putting it voluntarily into my body when I am not even sure it will help! I feel trapped and at the same time ungrateful that I have been given more time and I am wasting it worrying.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  3. 3
    • mamaj2012
    • Experience with Gastrointestinal Str...
    over 4 years ago
    mamaj2012's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    I am not sure that the side effects are from the chemotherapy . This journey started in 2011 when I knew something was wrong but they couldn't find the cause. It took over a year of testing and iron infusions to find the cause of my anemia and weight loss. I remember being so weak last year that I just didn't want to wake up . Now when I have a side effect from the treatment , it is usually nausea and fatigue. But compared to where I have been this last year they seem minor. Still they keep me from hours of "living" with my family and I resent that at times t

    0 Comments
  4. 4
    • mamaj2012
    • Experience with Gastrointestinal Str...
    over 4 years ago
    mamaj2012's Avatar

    Lost loved one

    Loss

    i have loss my grandmother, my mother and my father to cancer. Now I am living through/ with it and I worry that my only legacy to my children will be to genetically hand this horrible disease down to them

    0 Comments
  5. 5
    • mamaj2012
    • Experience with Gastrointestinal Str...
    over 4 years ago
    mamaj2012's Avatar

    Decision Point

    This person has yet to add any details about this experience.

    0 Comments
  6. 6
    • mamaj2012
    • Experience with Gastrointestinal Str...
    over 4 years ago
    mamaj2012's Avatar

    Other Care

    This person has yet to add any details about this experience.

    0 Comments