vlpLincoln's Journey with Primary Peritoneal Carcinoma

Patient: Ovarian and Fallopian Tube Cancer > Primary Peritoneal Carcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Female, Age: 65, Stage IIIC

  1. 1
    • vlpLincoln
    • Experience with Primary Peritoneal ...
    over 4 years ago
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    Diagnosed

    Oh No

    After attending a wedding I came home feeling and looking like a should have a baby. I thought I was dealing with menopausal weight gain and tried to change my diet to deal with constipation and diarrhea. You know less milk, less flour, and more yogurt. I had no appetite or could only eat half a plate. I even tried colon health products. I had only experience pain once in my abdomen and it did not last more that a couple of minutes. A week later, my mother who lives with us insisted, I made the appoinment with my family doctor. He sent me the same afternoon to have ultrasound done on my legs to make sure there wasn't any blood clots. He also scheduled me to have ultrasounds done on my abdomen and pelvic, then on to a gastrologist who did more blood work. The next day I was in the hospital for tests. I had no temp, blood pressure was good. I was the perfect patient on no medication. They did take 4 1/2 liters of liquid off of my abdomen. I felt much better. The following morning, the hospital doctor told us that I had cancer but there was no specialist in Lincoln. That evening I was at the UNMC in Omaha. I was so blessed. Three days later I had my first chemo treatment.

    1 Comment
  2. 2
    • vlpLincoln
    • Experience with Primary Peritoneal ...
    over 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    My port has been infection free but a poke is still a poke. It can hurt just as taking blood sample from your arm. My chemo treatments have went well using the port.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • vlpLincoln
    • Experience with Primary Peritoneal ...
    over 4 years ago
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    Debulking surgery

    Procedure or Surgery

    I was given almost 4 weeks to recover from the last chemo and then another 5 weeks to recover from the surgery. The surgery confirmed that it was ovarian cancer because of a 11cm tumor on ovary. So it was a complete hysterectomy with exploratory. My appendix had been gone for decades but no lymph nodes were removed. Doctor said everything was good.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
  4. 4
    • vlpLincoln
    • Experience with Primary Peritoneal ...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I had 3 chemo treatments before I was scheduled for debulking surgery. My treatment included Taxol and Carboplatin on one day and Neulasta on the following day. I took Dexmethsaone before Taxol and following the Neulasta. I was never ill from chemo but had bone pain from the Neulasta. I took Motrin IB when I needed it. I also was prescribed lorszpam and prochlorperazine as needed.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  5. 5
    • vlpLincoln
    • Experience with Primary Peritoneal ...
    over 4 years ago
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    Weight loss

    Side Effects

    I lost 10 1/2 pounds when the initial 4 1/2 liters of liquid was removed. I lost another 10-15 lbs because I did not have much appetite to start with.

    1 Comment
  6. 6
    • vlpLincoln
    • Experience with Primary Peritoneal ...
    over 4 years ago
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    Hair loss (alopecia)

    Side Effects

    They told me I would lose my hair in 10-14 days. On the 16th day it started. Since it was shoulder length I went and had it cut short. It still bothered me as it came out. Thanks a very good friend my mother and I went to the local American Cancer Society office where we picked out a free wig. Thank you to all those who donate wigs. I also attended a Feel Good, Look Good workshop. Thank you to all those who donate makeup.

    2 Comments
  7. 7
    • vlpLincoln
    • Experience with Primary Peritoneal ...
    over 4 years ago
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    Nerve damage (peripheral neuropathy)

    Side Effects

    This is the worse side effect I have. My feet will wake me at night with the tingling. My fingers at time will feel strange but will still function. Occasionally I will ask my husband to rub certain parts of my foot because it feels like it might cramp. By the end of the 3rd week before the next chemo is scheduled the numbness is almost not there.

    1 Comment
  8. 8
    • vlpLincoln
    • Experience with Primary Peritoneal ...
    over 4 years ago
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    Hair is back

    Celebration

    While I recovered from surgery the hair came back. Soft and fuzzy but it did come back including eyelashes and eyebrows! Wished the other facial hair had not...

    1 Comment
  9. 9
    • vlpLincoln
    • Experience with Primary Peritoneal ...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Recovered from surgery and continue with the same chemo as before. CA125 number was 186 after the 1st treatment and went to 16 after the 3rd, my 4th to 7 and now after my 5th to 5.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
  10. 10
    • vlpLincoln
    • Experience with Primary Peritoneal ...
    over 4 years ago
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    Hair loss (alopecia)

    Side Effects

    My fuzzies are leaving my head and so are other hairy parts...

    0 Comments
  11. 11
    • vlpLincoln
    • Experience with Primary Peritoneal ...
    over 4 years ago
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    Constipation

    Side Effects

    I need to drink a lot more liquid to keep the body moving. Those Cherrios are a good thing.

    0 Comments
  12. 12
    • vlpLincoln
    • Experience with Primary Peritoneal ...
    over 4 years ago
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    Nerve damage (peripheral neuropathy)

    Side Effects

    Numbness in the feet and hands are back. It seems stronger than with the first set of chemo...

    0 Comments
  13. 13
    • vlpLincoln
    • Experience with Primary Peritoneal ...
    over 4 years ago
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    Finished treatment

    Celebration

    Finished my last scheduled #6 chemo on Tuesday. Slept through it all. It was not what I intended to do since a friend brought me and I had lots of conversations planned. I will have 2 labs before my next doctor's appointment.

    1 Comment
  14. 14
    • vlpLincoln
    • Experience with Primary Peritoneal ...
    over 4 years ago
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    Finished treatment

    Celebration

    I had my last scheduled Blood Lab, CT Scan, and doctor's appointment two weeks after my last chemo. My number stayed at 5. Good news is that my next appointment is in three months instead of every week. I am still amazed that I never got ill from chemo enough to throw up. Thank you to my medical team!

    1 Comment