sofarsogood's Journey:

The hardest thing for me was learning my prognosis was poor, after being told at first that it was early & highly treatable. It made me lose trust in my doctors--I had thought my medical team was the best

My own doctor didn't call to inform me of the biopsy results. I learned from a county health care worker, by accident.

Insurance company refused to cover the course of treatment prescribed by my doctor. I took them to the state insurance board, and I won by unanimous decision. I had an attorney provided by the ACS.

I was really glad I decided to involve a plastic surgeon. I was opposed to this at first. Also, I insisted on a double mastectomy when the surgeon advised only a lumpectomy, and I was right.

Chemotherapy was not hard. What was hard was ENDING chemotherapy. I felt abandoned now that I wasn't doing anything to fight the cancer.

I hated radiation, but I'm glad I did it. Now I have to worry about what damage it has done.

Lucky to participate in a clinical trial. I hope something will be available in case of recurrence.

How do I tell if something is a result of the therapies, signs of a recurrence, or a totally new, unrelated problem.

Finishing therapy is a BIG adjustment .