sofarsogood's Journey:

Survivor: Breast Cancer > Invasive Lobular Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 7 years ago, Female, Age: 71, Stage IIIB, HER2 Positive: No, ER Positive: Yes, PR Positive: Don't Know

  1. 1
    over 5 years ago
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    Dx worse than believed

    Oh No

    The hardest thing for me was learning my prognosis was poor, after being told at first that it was early & highly treatable. It made me lose trust in my doctors--I had thought my medical team was the best

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  2. 2
    over 5 years ago
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    Diagnosed

    Oh No

    My own doctor didn't call to inform me of the biopsy results. I learned from a county health care worker, by accident.

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  3. 3
    over 5 years ago
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    Health insurance issue

    Oh No

    Insurance company refused to cover the course of treatment prescribed by my doctor. I took them to the state insurance board, and I won by unanimous decision. I had an attorney provided by the ACS.

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  4. 4
    over 5 years ago
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    Procedure or Surgery

    I was really glad I decided to involve a plastic surgeon. I was opposed to this at first. Also, I insisted on a double mastectomy when the surgeon advised only a lumpectomy, and I was right.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  5. 5
    over 5 years ago
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    Drug or Chemo Therapy

    Chemotherapy was not hard. What was hard was ENDING chemotherapy. I felt abandoned now that I wasn't doing anything to fight the cancer.

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
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  6. 6
    over 5 years ago
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    Radiation

    I hated radiation, but I'm glad I did it. Now I have to worry about what damage it has done.

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  7. 7
    over 5 years ago
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    Clinical Trial

    Lucky to participate in a clinical trial. I hope something will be available in case of recurrence.

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  8. 8
    over 5 years ago
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    Side Effects

    How do I tell if something is a result of the therapies, signs of a recurrence, or a totally new, unrelated problem.

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  9. 9
    over 5 years ago
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    Finished treatment

    Celebration

    Finishing therapy is a BIG adjustment .

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