RachelB's Journey with Non-Hodgkin Lymphoma (NHL)

Patient: Non-Hodgkin Lymphoma (NHL)

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 4 years ago, Female, Age: 62, Stage IV

  1. 1
    • RachelB
    • Experience with Non-Hodgkin Lymphoma (...
    over 4 years ago
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    Diagnosed

    Oh No

    I am not sure if the first and largest tumor is attached to right kidney but it is impeding the uretheria and urine flow.. I went to the ER for apendix I thought. A week later I have two tumors. MRI thenThey placed a tube in the top of the kidney to let it drainbecause that was causing the pain I though might be appendix. 5 centemeters and they said the tumor has incased or put pressure on the uretheria.I don't know if that mean metast. The tube is helping and they then did a biopsy. It was positive for non hodg Lymphomia.I was told that with chemo possibly the flow would return when the tumor shrinks and then I can get rid of attached collection bag. A pet scan next and found 2 centemeter tumor on mid to upper chest bone. Then the Dr. said there were many very small tumors in the lining of my stomach this was after pet scan.. and another tumor was found on my chest bone . 2 cen, Ok off for Bone marrow biopsy and that is still pending. This was less than a week ago. I had no pain or clues this was going on. I am scared to death . They were cautious about my prognosis and told that this is the best cancer to fight? I do not have insurance . The day My husband started to get insurance back I had to go into the hospital. The Dr.s were very helpfull and the hospital was incredible when it came to helping me.

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  2. 2
    • RachelB
    • Experience with Non-Hodgkin Lymphoma (...
    over 4 years ago
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    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • RachelB
    • Experience with Non-Hodgkin Lymphoma (...
    over 4 years ago
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    Drug or Chemo Therapy

    We are waiting on the bone marrow results and taking all the tests. The Dr is going on Vacation while we wait for results. That concerns me because I am already at 4? Good bone marrow results. I start RCHOP tomorrow the 3rd of Dec 20012

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  4. 4
    • RachelB
    • Experience with Non-Hodgkin Lymphoma (...
    over 4 years ago
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    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  5. 5
    • RachelB
    • Experience with Non-Hodgkin Lymphoma (...
    over 4 years ago
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    My mind/Sense of Humor

    Loss

    My husband and I have come through a job lossfor him. He had a very serious car accident that the insurance company forces you to sue them for disability and they won't pay after you pay in for 22 years. We lost everything we had cars home property, My Mom died and my grandfather came to live with us. I took care of him and my mom and husband. Then I had to have brain surgery loose the house and get the kids through school. Our house finally after being a country wide mess sold after4 years shortsale. our credit is ruined and we moved to Calif to be close to our kids. My kids as adults are in therapy because of how the accident affected them concerning my husband and my relationship. They are getting better, My son was assulted with a knife at college and they did nothing I had to!. I was incharge of this along with my husbands lawsuit and grandpa and his dieing along with Mom. We just think we are getting ahead at starting over at 57 no Job thank you America, Husband is healed and wants to work and he has insurance and I lost mine then ok I have cancer. Really? God Please no. I can't in any way wrap my mind around this but have no time to just stop and think it over! I need anxioty meds now. I want to see my adult kids get married and have grand kids and actually see my very smart husband get back what he was robbed of from the company he worked for. You can't just sit and stew. This is unbelievable and cancer is the most painfull thing I have experienced next to loosing my mom.My Dad is 90 and I love him so much he is trying to be so positive for me to stay positive. I don't want him to watch him loose his daughter and see his grandkids hurting any more. This is life. With out God I would be completely a gonner. God please please help me get the right answers to things here. What happened was I spent so much time helping others in my family I did not see any symptoms for myself.My friends used to think I was funny now I think they are blown away that this many things can happen to one person! Jobe had an end....... is this it God Like anything else you have to keep trusting and I wish I could say that I am learning this. What I am learning is I look for the answers and they show up. I just don't like the answers right now. I cry sometimes. It dosn't help. Prayer with others is THE only thing that brings me peace and helps me cope. That and My Corgis.

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  6. 6
    • RachelB
    • Experience with Non-Hodgkin Lymphoma (...
    over 4 years ago
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    Get help no matter wether you have the money or not!

    Decision Point

    The hospital will help you! Thank God for St Joseph. Right now I am nervous about chemo tomorrow and the side effects. The Dr in my opinion could have been a little more explanitory about the druggs he was giving to us and how to use them. EMEND is used with the other drugss for nausea and you HAVE to take it before you beging chemo 1 hr before. I don't remember his explainng this and being over whelmed at the same time.

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  7. 7
    • RachelB
    • Experience with Non-Hodgkin Lymphoma (...
    over 4 years ago
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    Other Care

    This person has yet to add any details about this experience.

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  8. 8
    • RachelB
    • Experience with Non-Hodgkin Lymphoma (...
    over 4 years ago
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    Celebration

    Today my results from bone marrow biopsy came back clean!! Oh Thankyou God!

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  9. 9
    • RachelB
    • Experience with Non-Hodgkin Lymphoma (...
    about 4 years ago
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    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  10. 10
    • RachelB
    • Experience with Non-Hodgkin Lymphoma (...
    about 4 years ago
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    Other Care

    Druggs does anyone know how to get EMEND and have it paid for and does it really help. It is $400.00

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