fastdog's Journey with Mucinous Adenocarcinoma of the Appendix

Patient: Rare Cancers > Appendix Cancer > Mucinous Adenocarcinoma of the Appendix

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 6 years ago, Female, Age: 71

  1. 1
    • fastdog
    • Experience with Mucinous Adenocarcinom...
    almost 5 years ago
    fastdog's Avatar

    Diagnosed

    Oh No

    I was diagnosed 2 days before Thanksgiving last year (2011). I was told it was very likely ovarian cancer, and sent to a surgeon for a complete hysterectomy. As it turned out, when they opened me up, it was appendiceal cancer. It was pretty devastating news at any time, but especially before the Holidays. However, I was determined that we enjoy the Holidays, and we did. We both thought initially that a diagnosis of cancer was pretty much a death sentence, and you shrivel up and die within a matter of months. However, you don't. It's been a year, and I'm still here and going strong.

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  2. 2
    • fastdog
    • Experience with Mucinous Adenocarcinom...
    almost 5 years ago
    fastdog's Avatar

    Surgery 3. August 2014, 3 tumors removed, and urologist assisted since one was pressing on my right kidney.

    Procedure or Surgery

    I was very fortunate in both surgeries to have excellent surgeons. I had the 1st in Dec. of 2011, recovered, had chemo to shrink what was shrinkable, then went on to HIPEC in June of 2012. HIPEC was a 12 hour surgery in which they remove what needs to be removed (in my case, the spleen etc) and then run heated chemo through the abdomen. Amazing surgery done by an amazing surgeon. I've now had a baseline CT scan and will have one every 3 months. I'm at high risk for cancer to return, but it is slow growing.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    4 Comments
  3. 3
    • fastdog
    • Experience with Mucinous Adenocarcinom...
    almost 5 years ago
    fastdog's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemo made me terribly, terribly nauseated, plus I had to wear aq pump for 3 days after chemo, which administered more chemo. Oncologist finally found drugs that somewhat minimized the nausea. Very bad experience from chemo, 5FU pump. Oct 2014. I was speaking gibberish, and got two ambulance trips to the hospital, where they thought I was having a stroke. But it was from the chemo pump. Very, very scary and unusual reaction, as I'd had this kind of chemo before without such dramatic problems.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    3 Comments
  4. 4
    • fastdog
    • Experience with Mucinous Adenocarcinom...
    almost 5 years ago
    fastdog's Avatar

    Pretty much, every day is a celebration!

    Celebration

    During my first surgery, I shared a hospital room with a woman who did nothing but complain, yell, berate the hospital staff and fight with her relatives. I pretty much kept the curtain closed and tried to be extra nice to the hardworking staff. I feel I was given a very, very powerful lesson, and I call it "which side of the curtain do you want to be on?" Hint: I am not on hers! hahahaha June 2015 CT scan showed NED. I'm under no illusions about it coming back, but I've had the Summer off and we'll see what the Aug. 2015 CT scan shows.

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