Quiltstitchsew's Journey:

Patient: Breast Cancer > Invasive Lobular Carcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Female, Age: 67, Stage IIB, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    almost 4 years ago
    Quiltstitchsew's Avatar


    Drug or Chemo Therapy

    Had terrible reaction to Taxol and Taxotere (burning feet) and continuous sinus drainage and bronchitis.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
  2. 2
    almost 4 years ago
    Quiltstitchsew's Avatar

    Choice between lumpectomy or mastectomy

    Decision Point

    Lobular breast cancer does not show on mammogram. How will I ever believe it is not there in the surgical breast or in the other one? Will be having axillary dissection since that is where the cancer was initially found. There was no lump in the breast until after the breast MRI.

  3. 3
    over 3 years ago
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    Finished treatment


    My cancer was diagnosed from an enlarged lymph node biopsy and then breast MRI. Chemotherapy first with many complications (shingles, severe bronchitis, severe blistered feet from Taxol and Taxotere, had to miss last treatment. With help from list, decided to have bilateral mastectomy. It was a good choice as lobar carcinoma in situ was found the the other breast. There were 15 of 16 lymph nodes positive for cancer, so stage went from IIB to IIIC. Finished radiation on Monday, started aromatase inhibitor on Tuesday. Very uncomfortable right now due to radiation but I was told to expect it, so I know I just need to wait and I will be better very soon and do not have to have more treatment. Hopefully for a long time, if not forever.