Nonnie917's Journey with Breast Cancer

Survivor: Breast Cancer

Patient Info: Prefer not to answer/not applicable/unsure, Diagnosed: over 5 years ago, Female, Age: 66, Stage 0, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    almost 5 years ago
    Nonnie917's Avatar

    Double Mastectomy

    Procedure or Surgery

    I think that I have explained it all in my other comments because I didn't see this option. I had a double mastectomy with a flap reconstruction later. Not happy with any of it or my life right now.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  2. 2
    almost 5 years ago
    Nonnie917's Avatar

    Diagnosed

    Oh No

    I was shocked when I found out I had early stage of Ductal Carcinonma in-situ. When I saw the surgeon it was going to be a simple lumpectomy, but when I got there the radiologist who read my mammo missed a spot at the 5:30 position and the other two were 1 and 2:00 positions. He ordered a bilateral MRI and the results were devestating. They wanted me to go through a triple MRI guided biopsy because there were two active clusters in the left breast the mammo did not pick up and the ultra sounds on the breasts picked up nothing. When I heard this I was so devestated I couldn't doanything but cry and make the decision to have double mastectomy.

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  3. 3
    almost 5 years ago
    Nonnie917's Avatar

    Whether to do a lumpectomy or mastectomy

    Decision Point

    I had to chose a double mastectomy because it wasn't just one breast with cancer now it was both breasts. The right breast cancer was localized and I could have had gotten away with just a lumpectomy, but when the surgeon noticed another spot the radiologist missed on my mammo I had to have a bi-lateral MRI which found two active clusters in the left breast. The final decision was a double mastectomy.

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  4. 4
    almost 5 years ago
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    My mind/Sense of Humor

    Loss

    Because of the double mastectomy I no longer have that zest for life I once had. I have been very depressed over the mutilation of my body and the reconstruction did not turn out the way I expected so that has added to my deep depression. I am seeing a counselor who deals with cancer patients so I can stop crying all the time. I feel like a circus freak because of the way the reconstruted breasts turned out. I see the plastic surgeon again on the 27th and I plan on having a talk with him about fixing what I think is a mess up. He said I could start wearing a bra. HA! What a joke. I went to try on bras and because my midrif is a 42 the smallest cup size you can find is a C. I held a B cup up against my breasts and the right one ALMOST filled it and the left one could only fill half of the cup. The doctor told my husband after surgery that they got a little more fat from my lower belly than expected and that I would be happy with the results. WRONG! I have never been so unhappy in my life. I was hoping for a C cup because I am a large framed woman who is slightly overweight. The size these are now I don't need a bra because there is nothing to show. When I get done with the doctor he WILL put implants in to even me out and make me a size C and he will also clean up the belly area and make it neater too. It is an ugly uneven mess. I am a diabetic so I am slow to heal and I had the reconstruction surgery on the 28th of September and I still have about 4 inches of open wound that I have to have cleaned and changed every day. I am housebound and only get out for doctor's appointments. I have missed going to church and feel like I am back sliding. I am really confused about my fellings about myself and it hurts my husband to see me this way. I just can't help the way I feel. Wonder if anyone else feels this way?

    3 Comments
  5. 5
    over 4 years ago
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    Kidney failure

    Symptoms

    I ask you, what else could go wrong? With all these surgeries I have had over the last 5 months I now Acute Kidney failure. When will it end. It's because of the surgeries that this has happened, according to the science health pages anyway, Now I have to put off my final surgery for my implants because of this. It stinks. Oh well such is life I guess.

    1 Comment
  6. 6
    over 4 years ago
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    Remission

    Celebration

    I had my 1 year breast MRI today instead of a mammogram, which I can't have anymore, and there was no cancer detected. I am cancer free at my one year mark. I was so worried about that test and so relieved that it came out clean. Four more years to go before I can officially be considered cancer free.

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  7. 7
    about 4 years ago
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    I got the tape off

    Celebration

    I feel 100% better today. I got that sterile strip tape off my boob scars so there is no more pulling. I feel so much better I can't even put it into words. I just know that my boobs aren't sore right now because there is no tape pulling on them. I soaked that stuff for about 1/2 hour and then got in the shower and let the shower do the rest. The water pushed on the tape as I pulled and it came right off. Almost two weeks out of surgery and I finally got it off. I am so happy. Now I just have to wait for the tenderness of the scar tissue to heal so it doesn't hurt to the touch anymore.

    1 Comment
  8. 8
    about 3 years ago
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    Passed the two year mark

    Celebration

    I had my second MRI since my BL surgery and it came out clean, I have made it past the two year mark. Two down 3 to go before I can honestly say I am cancer free.

    1 Comment
  9. 9
    almost 5 years ago
    Nonnie917's Avatar

    Headed for 2nd reconstruction surgery

    Other Care

    Well, it looks like January or February is going to be my final reconstruction surgery. I have had to argue with the doctor a little over what I want done. He thinks that the breasts look fine the way are now, but I do not. They don't even look like breasts. They look like two blobs of fat laying on my chest with these big ole scars going straight across the center of them. Then on the sides there is extra flabby skin just hanging there which makes it very uncomfortable to wear a bra so I don't. So I told him I want them looking like real beasts which means removing the extra flab on the sides and shaping those flabby blobs to look like shaped breasts. So my pre-op appointment I will be stressing this again with a photo of how want to look. I just do not like the way I look now; I look like a circus freak. And, I can't go for a second opinion because he is the only plastic surgeon for our small little town. Besides, he is good. I have seen some of his work so I know he can do what I want. Am I being a baby about this demanding to look normal when I have had both my breasts removed and flaps put in that are not attached to the chest wall? I just want to look as close to normal as I can. So much has gone on in my life since the cancer diagnoses that I am now blaming myself for the tight financial bind we are in. Does or has anyone else felt that way when their bills started coming in? I am selling my 2004 300M to get these bills paid. I hate having bills hanging over my head and if scraficing my car will fix it then so be it. I am sorry for crying on your shoulders. The only family member I could cry to before now can't handle it because she gets angina from her bad heart. And, while I have a great husband, he just keeps telling me everything is going to be okay and I don't feel that way. Four thousand dollars in medical bills is a lot of money and its scary. Guess it's just me and the fear of the unknown. When I heal from the last surgery it is going to be time for me to have another breast MRI, since I can't have mammogram anymore. I am so afraid that the cancer is going to be back I can't seem to shake it from my thoughts. Guess everybody feels that way the first time they have to have a check up after their treatments, surgery, etc. huh?

    5 Comments