MaryTD777's Journey with Lung Cancer

Patient: Lung Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 6 years ago, Female, Age: 53

  1. 1
    almost 5 years ago
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    Diagnosed

    Oh No

    3/23/11 NSCLC Squamous cell carcenoma T3M0N0 IIB PanCoast Tumor Right lung

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  2. 2
    over 4 years ago
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    Mediastinoscopy

    Procedure or Surgery

    I can feel the teensy scar but can barely see it. I know, not a big deal when looking at the big picture, but some people worry about that sort of thing.

    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    almost 5 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    Best way to receive chemo, contrast for tests and to have blood drawn

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  4. 4
    almost 5 years ago
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    Chemotherapy and radiation combined

    Drug or Chemo Therapy

    The only "bad" side effect was the sore throat radiation gave me. I know I was VERY fortunate. Beyond that, hair loss stunk... I lost about half of mine and didn't bother to shave my head. I know my bumpy scalp is ugly and fooled myself into thinking my tufts of hair covered the lump pretty well. Heheheee. The double chemo (Cisplatin & Etopiside [sp?]) and Radiation days were SOOOooo long! It all worked the way it needed to, so I can't complain.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  5. 5
    over 4 years ago
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    External radiation

    Radiation

    Started the same day I started chemo. 7 beams per day, every weekday except Memorial Day for 28 weekdays straight. Biggest problem / side effect was sore throat and I was pretty tired, but I was also driving myself to & fro daily about 75 miles each way.

    Painless Experience: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
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  6. 6
    over 4 years ago
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    Lobectomy

    Procedure or Surgery

    My surgery was actually 2 for 1. The tumor was touching the spine, so a neurosurgeon had to get the tumor out of there, resect the T2 nerve and some bone of C3,4&5 before the pulmonary surgeon could do the lobectomy and chest wall resection which took 3 ribs. Very painful recovery, but also a very successful surgery with clean margins everywhere! :-)

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  7. 7
    over 4 years ago
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    Anniversary

    Celebration

    8/15/12 ONE YEAR post-op! Hoooray! OK, shut up and stop celebrating. Neuro-surgeon is going back in 8/16/12 to take out the small rod holding up the vertbrae that were partialy removed last year and putting in 2 LONGER rods bilaterally from C2 down to T6. Maybe THAT will hold up my fat head! OY

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  8. 8
    over 4 years ago
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    Surgery

    Procedure or Surgery

    8/16/12 See post in prior celebration that ran together... Surgery prep cut off 1 year post op / cancer free anniversary. NeoroSurgeon had to go back in, take out single post C-5 / C-2 and run 2 rods ~ 1 down each side of the spine from C-5 / T6

    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  9. 9
    over 4 years ago
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    Scans 1/24/13

    Celebration

    PET scan showed prior growth / node stopped growing and was NOT cancerous AND CT scan showed vertebrae healed enough I can stop wearing ugly "turtle" brace!!

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  10. 10
    about 3 years ago
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    Another cancer free scan!!

    Celebration

    In Feb I graduated to scans every 6 months instead 3 and today I had another cancer free scan. That means that next Friday ~ 8/15 ~ I will hit the THREE YEAR cancer free mark. 8/15 is the anniversary of the surgery I had in 2011 to remove what was left behind after the chemo and radiation killed all of the cancer that was in my lung and trying to snake it's way between my cervical vertebrae. I still have lots of pain from the spine and nerve damage, but I am still on the green side of the grass, so I win!!! Go to He11 cancer, I beat your azz!

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  11. 11
    over 2 years ago
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    Anniversary

    Celebration

    3/23/15 was the 4 year anniversary of my Dx. and my 4 year anniversary of quitting smoking :)

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  12. 12
    almost 3 years ago
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    Anniversary

    Celebration

    8/15/14 is 3 years post-op / cancer free confirmed via CT scan 8/8/14

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