Chippewagal's Journey with Acute Myeloid Leukemia (AML)

Spouse/Partner: Leukemia > Acute Myeloid Leukemia (AML)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Male, Age: 62

  1. 1
    about 4 years ago
    Chippewagal's Avatar

    Diagnosed

    Oh No

    My husband had Polycithemia Vera for 11 years. We were told that Leukemia was one of the complications of that disorder. This summer in August, Dan was throwing up a lot, and he said that he was dying. I didn't think so, but I took him into ER , thinking it was dehydration. Instead they did a bone marrow biopsy and found out it was Leukemia.

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  2. 2
    about 4 years ago
    Chippewagal's Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    about 4 years ago
    Chippewagal's Avatar

    Kidney damage

    Side Effects

    Dan got C diff, and that lasted for days. Then his blood pressure dropped very low, and he was taken to the ICU. The doctors said that he was one of their sickest patients. They said that his kidneys had suddenly been damaged. He had to have Dialysis for a couple of weeks. Slowly, the kidneys are improving.

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  4. 4
    about 4 years ago
    Chippewagal's Avatar

    hair

    Loss

    Dan did not seem to mind losing his hair much, because a brother of his already has the same look (pretty bald) He says that it is an honor to look like Mike.

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  5. 5
    about 4 years ago
    Chippewagal's Avatar

    To bring Dan home, or send him to a nursing home for Rehab

    Decision Point

    The hospital rehab unit said that he did not successfully meet their goals this week. The question now is: Could we take care of him at home well enough, or would it be more beneficial to have him go to a nursing home for a while to be in rehab. Dan has already been in the hospital for 2 1/2 months. It is hard to think about him having to go to a nursing home at age 57, even if it is for a short stay. On the other hand, the stay at the nursing home would be paid for by insurance. What if we bring him home, to find out he should have gone to the nursing home, and then it might not be covered since he didn't go straight from the hospital.? I am just finding this out today, so it is overwhelming.

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