Lili's Journey with Hürthle Cell Carcinoma (also called O...

Patient: Thyroid Cancer > Hürthle Cell Carcinoma (also called Oxyphil Cell Carcinoma)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 47

  1. 1
    • Lili
    • Experience with Hürthle Cell Carcinoma (a...
    almost 5 years ago
    Lili's Avatar

    Surgery

    Procedure or Surgery

    I had my right thyroid gland removed on Nov 14, 2012. The on site biopsy said it was benign. Then the lab result said it is Hurthle cell carcinoma. The dr wants to open up the wound and remove the left lobe.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  2. 2
    • Lili
    • Experience with Hürthle Cell Carcinoma (a...
    almost 5 years ago
    Lili's Avatar

    I am waiting to have 2nd surgery

    Procedure or Surgery

    Last time I was asking if anyone went to Mayo Clinic, MN, to seek medical help and did not find anyone who went there. Since I have been there and just want to share my experience. After my 1st surgery locally last year, I decided to go to Mayo Clinic. I was immediately assigned with an endocrinologist who acted as my case coordinator. The first time when I was there in December, I met the endo and talked with him. He seemed to be knowledgeable and understood our situation (travel from another state, cannot stay long etc). The Pathologist reconfirmed the results of bioposy slides I brought with me. So the endo said that I need 2nd surgery and started to arrange with a surgeon. He called the surgeon in the followup visit next day and discussed with the surgeon about my surgery and was told the surgery cannot happen until 6 weeks later. So I had an appointment in January to meet the surgeon. The endo prescribed Cytomel for me to take in between. On January 7, 2013 I went to Mayo Clinic and met the endo again and first time with surgeon. In the meeting with the surgeon I was told he cannot operate on the same scar until it is fully healed. That was totally a surprise as I was prepared to have the 2nd surgery this time! After talking with the endo again, he was aware of the miscommunication and offered to reimburse some of our expenses. Overall, in the two trips to Mayo Clinic, I was impressed with their services. It is very convenient. Everything we had to do (lab, ultrasound, vocal chord checkup, billing, patient relationship etc) is within two connected buildings. The surgeon came to endocrinology department to meet with us. Staffs (medical and business) are nice, listening to our concerns and willing to work with us.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments