saddee's Journey with High-Grade Astrocytoma (also called G...

Spouse/Partner: Brain and Spinal Cord Tumors in Adults > Glioma > Astrocytoma > High-Grade Astrocytoma (also called Glioblastoma)

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 4 years ago, Male, Age: 65

  1. 1
    • saddee
    • Experience with High-Grade Astrocytoma ...
    over 4 years ago
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    Diagnosed

    Oh No

    8/7/12 what a shock!!!!!!! I took my husband to the ER and was told that they saw a mass on the brain but they were not sure what it was and scheduled an MRI for the next day.

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  2. 2
    • saddee
    • Experience with High-Grade Astrocytoma ...
    over 4 years ago
    saddee's Avatar

    Surgery

    Procedure or Surgery

    8/14/12 the day the world came crashing down on my family.The surgery was done and surgeon gave us the terrible news that it was a glio tumor grade 4 and told us he had 3-4 months to live.We were devastated we had no clue what to do at this point.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • saddee
    • Experience with High-Grade Astrocytoma ...
    over 4 years ago
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    Allergic reaction

    Side Effects

    He had an reaction to the steriods we was taking to keep the swelling down in the brain and went physo and to be restrainted in the hosiptal. He spent 13 days in ICU.

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  4. 4
    • saddee
    • Experience with High-Grade Astrocytoma ...
    over 4 years ago
    saddee's Avatar

    to fight or give in!!!!!!!!!!!

    Decision Point

    After spending 14 days in the hosiptal I asked that he moved to a rehab hospital to regain his strength. The surgeon did not think he should go but I pursued it anyway and won. After 9 days he was up and walking and jogging in place so he was released. Good news - Not--- after being released he became parinoid again and it wasn't pretty. At this point he hated all of the doctors he had so we had to start over and new ones. It is now mid Septmeber and we looking for new doctors to care for him. At last he seems to be calming down after finding new doctors. At this point we were given the options to treat with chemo & radiation or do nothing. Our family opted to go for the treatment and see how it went.

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  5. 5
    • saddee
    • Experience with High-Grade Astrocytoma ...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Started chemo drug Temodar 10/1.Little to none side effects

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  6. 6
    • saddee
    • Experience with High-Grade Astrocytoma ...
    over 4 years ago
    saddee's Avatar

    External radiation

    Radiation

    Started radiation 10/1. no real side effect except the normal fatigue. Last treatment was 11/15 and he is still very fatigued . Not sure if this normal or not but he has been going to physical theraphy during his treatments but that will ending next week and I very worried about keeping him active. Any ideas ?????????

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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