Rainbowkdm's Journey with Brain and Spinal Cord Tumors in Adults

Caregiver: Brain and Spinal Cord Tumors in Adults

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 6 years ago, Male, Age: 53

  1. 1
    • Rainbowkdm
    • Experience with Brain and Spinal Co...
    over 5 years ago
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    Diagnosed

    Oh No

    My husband, at age 46, was diagnosed with GBM on Sept. 23, 2010. He had started having some weakness in his left arm and leg. After a few weeks, it kept getting worse and I took him to the ER. They thought a possible stroke but the CT scan showed a different truth.

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  2. 2
    • Rainbowkdm
    • Experience with Brain and Spinal Co...
    over 5 years ago
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    Surgery

    Procedure or Surgery

    My husband had craniotomy and removal of all the tumor they could see on Sept 27, 2010. He was in hospital for 1 week then transferred to rehab for 21 days.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • Rainbowkdm
    • Experience with Brain and Spinal Co...
    over 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    My husband went through 6 weeks of Temodar and radiation. Lost his hair in the radiation zone so we just shaved it all off. After a year on Temodar, GBM started progressing so we have changed to Avastin and Irinoteken. Just completed 11 treatments. After first 6, MRI showed a lot of dead cancer. Will have another after 12th dose.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  4. 4
    • Rainbowkdm
    • Experience with Brain and Spinal Co...
    over 5 years ago
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    External radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  5. 5
    • Rainbowkdm
    • Experience with Brain and Spinal Co...
    over 5 years ago
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    Fatigue (tiredness)

    Side Effects

    This person has yet to add any details about this experience.

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  6. 6
    • Rainbowkdm
    • Experience with Brain and Spinal Co...
    over 5 years ago
    Rainbowkdm's Avatar

    Decision Point

    On October 11, 2011, we discovered my husband's GBM has decided to grow back. We have had to decided to fight or let it win. We know eventually it's going to win anyway, but for right now, we are back to chemo. Avastin this time. He had to have a port put in.

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