Ravenmom's Journey with Rare Cancers

Patient: Rare Cancers

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Female, Age: 36

  1. 1
    over 4 years ago
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    Diagnosed

    Oh No

    Went to er in sept after not being able to eat most of the summer and a horrible pain after every time I'd try to swallow a bite of food. Docs telling me I had acid reflux, prescribed me acid reflux meds. They didn't help. Finally was admitted to hospital after going to er because I was so weak and lightheaded I couldn't function. Endoscopy showed malignancy, biopsy confirmed it was cancer. I was diagnosed with stage III adenocarcinoma, esophageal cancer.

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  2. 2
    over 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    Mediport and feeding tube inserted. Mediport has been great. I hated that feeding tube.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Was given taxol and carboplatin weekly for 4 weeks, then only carboplatin for 4 more weeks. Been puking up my toenails since first dose. Prescribed multiple nausea meds, a couple somewhat work for a while. Chemo ended about a month ago, still throwing up, hair falling out, still feel weak and tired a lot. Also lost all muscle tone.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    over 4 years ago
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    External radiation

    Radiation

    Started radiation during Chemo, after a while caused nausea, throwing up, weakness and fatigue. Also caused ulcers in my esophagus, and difficulty swallowing and eating. Still having these effects. Radiation ended about two weeks ago.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    over 4 years ago
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    Side Effects

    Almost constant nausea, throwing up, being tired all the time, weakness, ulcers, difficulty swallowing and eating. Also irritability and hair loss.

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  6. 6
    over 4 years ago
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    Other

    Decision Point

    Right now just waiting to see what doc wants to do. I still have to have surgery but he says I'm not recuperated enough yet from Chemo and radiation. Going for follow up appts, playing it by ear.

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