jpow's Journey with Gastrointestinal Stromal Tumor (GIST)...

Patient: Colorectal (Colon) Cancer > Gastrointestinal Stromal Tumor (GIST)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 5 years ago, Female, Age: 41, KRAS mutation positive: Don't Know, BRAF mutation positive: Don't Know, Stage IV

  1. 1
    • jpow
    • Experience with Gastrointestinal Stromal ...
    over 4 years ago
    jpow's Avatar

    Colostomy

    Procedure or Surgery

    I had the corolrectal surgery and they were able to get 85% of the tumors out...still have tumors in my colon and also my liver and pelvis. Had to get the colosomy bag but I am able to have the colon resected if the tumors can be taken care of...hoping someday that is a possibility!

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  2. 2
    • jpow
    • Experience with Gastrointestinal Stromal ...
    over 4 years ago
    jpow's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Did my first 12 rounds of chemo with 46 hours on the home pump every other week..it shrunk some tumors...we thought liver surgery was the next step...so when I went in for surgery after they cut me open they found more tumors on the outside of my liver so they were unable to operate. So I just started Monday on a new chemo treatment...this time I will lose my hair. Hard to hear that but I will get through it...just hoping things start shrinking and quit spreading

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    1 Comment