Hunter1021's Journey with Ependymoma

Patient: Brain and Spinal Cord Tumors in Adults > Glioma > Ependymoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Male, Age: 24

  1. 1
    about 4 years ago
    Hunter1021's Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Neutral/NA
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
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  2. 2
    about 4 years ago
    Hunter1021's Avatar

    Diagnosed

    Oh No

    Was advised by 3 neurosurgeons that what had was a benign schwannoma as well as my family doctor and 2 radiologists. It was the last neurosurgeon that my family and spoke with that said that sometimes they do get surprises during surgery and that he would not give a definitive diagnosis until the pathology report came back. They did give me the definitive diagnosis and I was freaked out a little but felt like I was in good hands with doctors that were really looking out for me.

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  3. 3
    about 4 years ago
    Hunter1021's Avatar

    Where to go for treatment...and whether or not to proceed with radiation.

    Decision Point

    This person has yet to add any details about this experience.

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  4. 4
    about 4 years ago
    Hunter1021's Avatar

    External radiation

    Radiation

    Just started radiation...so far so good no side effects yet.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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