stpulotu's Journey with Leukemia

Patient: Leukemia

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Male, Age: 52

  1. 1
    over 4 years ago
    stpulotu's Avatar

    Diagnosed

    Oh No

    I guess, the question is what could I have done to prevent this from happening. Mostly so I can help others, especially the rest of my family from going through this also. I guess to a certain point it is a game of "Russian Roulette" or a roll of the die, especially with no family history of AML. Can't say that anymore. But how do I help my family avoid, as much as possible. I'm sure it is not just one thing but an accumulation of life experiences that build up to this, whether genetic or environmental or . . . whatever. I don't mind going through this if I can help my family not have too. Okay they can do the supporting, praying and loving part.

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  2. 2
    over 4 years ago
    stpulotu's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Diagnosed on Friday, Chemotherapy on Saturday (7days). Pretty fast and intense, which lead to a 6 week stay at the hospital. The first round was okay, one of the steroids wreaked havoc on my sugars. Luckily after the 2 or 3 days it stopped and my sugars went back to normal. On the first round I did lose my appetite after the 7 day chemo, and the hospital food was too bland for my taste. Nurses said food could be brought in, so some of it was good, and others didn't quite work. Mom came from Hawaii and brought me ulu and coconut, that was nice. There were misconceptions that were cleared up, like I thought chemotherapy was going to be in a room and I was going to be bombarded with radiation. (I was hoping Gamma, that way I can be the Hulk, again. lol) But it was just via IV, through my newly inserted Pic line. I guess radiation is a different therapy for other cancers. The side effects for me were minimal, no nausea, loss of appetite, I walked most days, I kept a tally on the board with my 30 laps daily goal. I was challenged 50 early on from one of the Nurses. I took the challenge and went for it. There were some days that I didn't make my 30--but I stayed close. The farther away from the end of chemotherapy the better I felt and the appetite came back. They did provide options for the menu, which pretty much made my daily lunch Cheeseburger and fries, but it was nice to be able to choose other things than the daily cycled menu. Found out last 2 days Steak was on the menu also. The 2 steak meals were great. Staying in the hospital was nice because I was on cruise control. Schedules were set, routines established, I didn't have to think. Of course, I was stuck on the Oncology floor for the whole 6 weeks. The chemotherapy was a ride, especially with the 2 Bone Marrow Biopsies. Heard horror stories but, with pre-drugs and local anesthesiology, it wasn't that bad. Lost about 20 lbs, alot of muscle mass. Still have lots of hanging jigglies still. I felt my strength loss as I was climb and taking down posters and cards and decorations as I was getting ready to discharge. Stamina not so good too. Just gotta build back up.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    over 4 years ago
    stpulotu's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    Neupogen! Dang, that was some fun. Of course, it starts off with this huge long needle and a whole lot of it, at least it seems that way cause they insert it slow. But the fun starts when it goes to work. First 2 day, I just got sucked dry. I was drained and achey and that's what they said would happened but not what I expected, of course, WBC counts started shooting up. The 3rd day was even more interesting because it was like electro-shock therapy, (not that I've had it before) But I was get jolts of "electricity" from my lower back, I suppose my hips. They weren't strong enough to enjoy and laugh at the "dull" pain. It was pretty consistent, and Tylenol helped. After talkig with the nurse she suggested something stronger, which I felt I needed to get some sleep--it worked. The next my WBC count was even higher, good enough to go home.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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