cllinda's Journey with Invasive (Infiltrating) Ductal Carcin...

Patient: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Female, Age: 57, Stage II, HER2 Positive: Yes, ER Positive: Yes, PR Positive: No

  1. 1
    • cllinda
    • Experience with Invasive (Infiltrating...
    about 4 years ago
    cllinda's Avatar

    Diagnosed

    Oh No

    My son had a severe accident in August. He was recovering well, so I decided to get my yearly pap test, mammogram, etc. so that I would be healthy taking care of him. Instead, they spotted something on my mammogram, which lead to an ultrasound, and then biopsy and surgery. So instead of being healthy to care for him, I'm dealing with breast cancer on top of trying to get him to physical therapy, doctor appointments, etc. It was really an "oh No!" for us, that's for sure!

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  2. 2
    • cllinda
    • Experience with Invasive (Infiltrating...
    over 3 years ago
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    Anemia (low red blood cell counts)

    Side Effects

    Blood counts were so low that I had to have three transfusions and three hospital stays. It was so rough.

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  3. 3
    • cllinda
    • Experience with Invasive (Infiltrating...
    about 4 years ago
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    Lumpectomy

    Procedure or Surgery

    After the first lumpectomy, I received a call from the doctor that said there were cancer cells in the margin and that I would need to have another surgery to clear out the bad cells. This broke my heart, because I didn't want to go through a second surgery. But a week later, I was back in, getting the second lumpectomy, and had to heal up again. Couldn't swim for a month.

    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • cllinda
    • Experience with Invasive (Infiltrating...
    over 3 years ago
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    External radiation

    Radiation

    The first few weeks I felt fine after the treatments, but as the radiation accumulated, it left me so tired that I was napping 3 or 4 times a day, plus sleeping at night. It's the worst tiredness I have ever had. And then once you are finished, it takes several weeks for it to leave your system and return you to normal. It took a good month before I wasn't having to sleep so much.

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    • cllinda
    • Experience with Invasive (Infiltrating...
    over 3 years ago
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    Lumpectomy

    Procedure or Surgery

    On my first lumpectomy, they didn't get clear margins, so they had to go back in two weeks later and clear the tissue up to the breast wall. It was discouraging to have to go through surgery again.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  6. 6
    • cllinda
    • Experience with Invasive (Infiltrating...
    over 3 years ago
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    Anniversary

    Celebration

    We celebrated 25 years of marriage on the 9th of October, 2013. On the 24th anniversary, I had gone for my biopsy and on the 11th, it was determined it was cancer. It was a long year, but between my husband, my family, and my friends, we made it to celebrate our 25th anniversary. For that, I am grateful.

    2 Comments
  7. 7
    • cllinda
    • Experience with Invasive (Infiltrating...
    over 3 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Lost 50 pounds due to not being able to eat. Was in the hospital three times and needed three blood transfusions because my blood counts were so low. After the hospital stays I was very weak and had to have a physical therapist and a nurse come to the house and work with me. It took about a month before I was strong enough to do a little work around the house. This was not easy for my family or me. And my son was there, every step of the way, taking care of me.

    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  8. 8
    • cllinda
    • Experience with Invasive (Infiltrating...
    almost 3 years ago
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    Anniversary

    Celebration

    It's one year since I was taken off chemo because my body couldn't handle it. I was weak, and on a walker. Today, I am stronger than ever and up to swimming over 50 lengths in the pool each day. It's been quite a year!

    3 Comments
  9. 9
    • cllinda
    • Experience with Invasive (Infiltrating...
    almost 3 years ago
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    Mother's Day Celebration.

    Celebration

    Happy Mother's Day! Last year, I was still undergoing treatment, and unable to have my usual celebration. But this year, I am strong again, and will be enjoying a White Sox game with my family, as we have so many times in the past. I so look forward to going to the game, celebrating Mother's Day and enjoying my family.

    2 Comments
  10. 10
    • cllinda
    • Experience with Invasive (Infiltrating...
    almost 3 years ago
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    Memorial Day.

    Celebration

    I really understood the meaning of the holiday this year. It's to pay respects to all that have served our country and paid the ultimate price for our freedom. Another thing that now is so important to me, is to be able to celebrate with my family. Last year, I was still on radiation, and pretty tired. I mostly slept through the months of May and June. But this year, I am so much stronger and could really enjoy the company of my family, including a cookout and time spent out in the backyard. We should all enjoy the little things in life more.

    0 Comments
  11. 11
    • cllinda
    • Experience with Invasive (Infiltrating...
    over 2 years ago
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    Anniversary

    Celebration

    Yesterday, October 9th is our 26th wedding anniversary, and my two year anniversary for my biopsy. I would not be here without all the help that my family gave me during my breast cancer treatment. I am very blessed.

    1 Comment
  12. 12
    • cllinda
    • Experience with Invasive (Infiltrating...
    over 2 years ago
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    Anniversary

    Celebration

    Today is two years since my diagnosis! I've been through a lot, but I'm just so happy to still be here.

    2 Comments
  13. 13
    • cllinda
    • Experience with Invasive (Infiltrating...
    over 1 year ago
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    Birth

    Celebration

    My granddaughter, Natalie Rose, was born today. 7lbs. 3oz. 20 inches long. I'm just so blessed that I can be there to see the joy this baby will bring to our family. This is joy.

    1 Comment
  14. 14
    • cllinda
    • Experience with Invasive (Infiltrating...
    over 1 year ago
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    MRI to rule out brain cancer.

    Procedure or Surgery

    Went 10-8-15 for MRI for headaches. First time, couldn't do it because I freaked out . Second time, tried Diazapan and was able to get through the procedure. Slept for the rest of the day, but felt fine on the 9th. Haven't heard results yet.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
  15. 15
    • cllinda
    • Experience with Invasive (Infiltrating...
    over 1 year ago
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    Mammogram Normal 10-15-15

    Celebration

    I got two phone calls telling me my mammograms were normal. It's great news for me.

    0 Comments
  16. 16
    • cllinda
    • Experience with Invasive (Infiltrating...
    about 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I feel that Chemotherapy is very hard on the body. The side effects of nausua, flu like sypmptoms and other things are terrible. And the worst part, so far, is losing my hair. I knew it was coming, but now it's coming out in clumps and it's hard to imagine that this is actually happening to me.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments