Lynae's Journey with Ovarian and Fallopian Tube Cancer

Patient: Ovarian and Fallopian Tube Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Female, Age: 57, Stage IV

  1. 1
    • Lynae
    • Experience with Ovarian and Fallopian Tu...
    over 4 years ago
    Lynae's Avatar

    Cancer has spread/Metastasized

    Oh No

    I had fluid build up in lung cavity and mid section. Cancer has spread to my omentum. That will have to be removed when I have surgery

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  2. 2
    • Lynae
    • Experience with Ovarian and Fallopian Tu...
    over 4 years ago
    Lynae's Avatar

    Fatigue (tiredness)

    Side Effects

    Nausea, fatigue, anemia a couple times, rash on face,

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  3. 3
    • Lynae
    • Experience with Ovarian and Fallopian Tu...
    over 4 years ago
    Lynae's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I almost died from the first drug they gave me. They had to administer epinephrin. My side affects are the bad Nausea if I am late with the pill, loss of energy, tired, and feel lousy off and on, tender head, loss of appitite, food will taste ok one day and not the next, dry mouth alot. My husband now does for me, what I have been doing for him for so many years. I dont get the things done that I used to. I have to pick and choose what I am going to do, and leave the rest for another time.

    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • Lynae
    • Experience with Ovarian and Fallopian Tu...
    almost 4 years ago
    Lynae's Avatar

    Finished treatment

    Celebration

    I have just finished my last chemo in June. My CA125 levels are now down into the acceptable range. My other blood counts are finally normal. My journey was with plenty of side effects. And I'm still having some side effects now.

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  5. 5
    • Lynae
    • Experience with Ovarian and Fallopian Tu...
    over 3 years ago
    Lynae's Avatar

    Milestones

    I've ended chemo in June of 2013. It is now end of October. For about 2 months after, my hair was falling into the bathroom sink. The drugs I was on did not cause hair loss. My skin was going through havoc. For my skin I found a product at a farmers market called wood violet skin repair. From cedar mountain herbs .com. It is olive oil based. I used it on my face. It's in a balm form. Takes very little. The bumps, the itching and flaky ness went away. It is not odorless.. Smells like eucalyptus. As of today, I'm still with no energy. Have to force myself to do things. I have to clean my home in steps. Can't do it all in one day. The longer I sit the weaker I get. Stay away from hot soaking baths early in the day. I just made that mistake yesterday. I was done for the rest of the day. My doctor told me that because my body has gone through so much with the chemo and surgery , it could take up to a year to get back to my old self. Now, because of having all my female organs removed, and not having any energy, I am a bit depressed. I want to do things, go places, clean my house and get organized. This is driving me nuts. I was given the choice of hormone replacement therapy, or anti depressants. Well, doc said the hormone thing would put me at risk for blood clots. Well, guess what I went for, ya, the antidepressant. I haven't filled it yet. I would rather see if I can't make it on my own. It's a tough battle. It's real easy to think that once your chemo has stopped you can go back to life as usual. NOPE. Life will never be the same. By the way, my 125 numbers were at five in July. Today they are less than four! A year earlier they were in the six thousands. I would say this is quite a milestone for me. I wish for all of you to have positive thoughts , prayers, and support during your journey. Stay away from anything that makes you feel bad.. Being positive and happy during your chemo months is what heals you. Negativity makes you sick. That is what really worked for me. I spent endless hours looking at beautiful , funny, cute pics on face book. I also got all my friends and family involved on FB. so my wall was flooded with inspiration. I called out for help on FB AND GOT IT. Love you Ladies.

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  6. 6
    • Lynae
    • Experience with Ovarian and Fallopian Tu...
    over 3 years ago
    Lynae's Avatar

    Cancer has spread/Metastasized

    Oh No

    It started the day I went to the dentist. They couldn't work on my teeth because I couldn't stop coughing. I was constantly using my inhaler. When I called the docs office and left a message, I had 6 messages on my phone before I got home. They wanted me in NOW. I went in, they took ex rays of my lungs and saw fluid in the lung cavity. It took up about a third of my lungs. The doc that saw me , I was in the walk in, went upstairs to my docs office and grabbed the nurse that knows me. Together they told me that I have cancer. What a shocker. My mom was with me at the time. All we both could do is stare at the wall. The doc kept talking, I don't know what he said. Everything was numb. Before I left this huge guy of a teddy bear gave me a hug I'll never forget.

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  7. 7
    • Lynae
    • Experience with Ovarian and Fallopian Tu...
    over 3 years ago
    Lynae's Avatar

    Robotic assisted laparoscopic radical hysterectomy

    Procedure or Surgery

    It was short and sweet. Not at all like a regular surgery. Very minimally invasive. Went home the next day. The day of surgery, I was up walking. Pain meds lasted only a couple days. But because it is still major surgery, you have to treat it as such. That was the hard part. To do nothing when you felt like you could. My surgery also included the removal of the omentum. That's the lining over the stomach.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
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  8. 8
    • Lynae
    • Experience with Ovarian and Fallopian Tu...
    over 3 years ago
    Lynae's Avatar

    No trial. I'm being studied because of how fast I recovered.

    Clinical Trial

    Lynae My case was submitted to Fred Hutchison for research because, my numbers went down so fast, and by the time for surgery, my tumors decreased more than half the size they were when diagnosed. I don't think I was on a clinical trial on the meds. But, I am being studied. Now they request my blood. I have found that having Chardonnay wine increases the white blood cell count. My cell count would be too low the day before chemo, and that night I would have some wine. The next day my white cells were high. 0 Likes More 10 minutes ago

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