aimo5465's Journey with Colorectal (Colon) Cancer

Caregiver: Colorectal (Colon) Cancer

Patient Info: Receiving hospice or palliative care, Diagnosed: almost 5 years ago, Male, Age: 30, KRAS mutation positive: Don't Know, BRAF mutation positive: Don't Know, Stage IIIC

  1. 1
    • aimo5465
    • Experience with Colorectal (Colon) Ca...
    almost 5 years ago
    aimo5465's Avatar

    colonoscopy

    Procedure or Surgery

    His colorectal surgeon told him to return to talk to his partner later in the day, but ended up going to the ER. The next day they did a colonoscopy and took a thrombosed hemerrhoid off his anal area.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    • aimo5465
    • Experience with Colorectal (Colon) Ca...
    almost 5 years ago
    aimo5465's Avatar

    Surgery

    Procedure or Surgery

    He had a mediport put in for chemo, that probably made everything that much more real. Here he is, 26 years old, and has a possible cancer diagnosis. And me, 23 years old, having to make many sacrifices at work to help him out.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • aimo5465
    • Experience with Colorectal (Colon) Ca...
    almost 5 years ago
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    Diagnosed

    Oh No

    We found out today that it is the early stages of rectal cancer, and he will begin chemo and radiation January 4

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  4. 4
    • aimo5465
    • Experience with Colorectal (Colon) Ca...
    almost 5 years ago
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    CT scan

    Procedure or Surgery

    Did a CT simulation and was shown around the office where radiation's going to be taking place. Starts Tuesday tentatively, unless his radiology oncologist says otherwise.

    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  5. 5
    • aimo5465
    • Experience with Colorectal (Colon) Ca...
    almost 5 years ago
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    Colostomy

    Procedure or Surgery

    Had a diverting colostomy to ease pain and prepare for chemo and radiation

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  6. 6
    • aimo5465
    • Experience with Colorectal (Colon) Ca...
    almost 5 years ago
    aimo5465's Avatar

    Now Stage 2

    Oh No

    At least that's what I think it is when his discharge summary said that he has a locally advanced rectal cancer...

    0 Comments
  7. 7
    • aimo5465
    • Experience with Colorectal (Colon) Ca...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Started about a week after his laproscopic colostomy. He's been doing fairly well with it. We have definitely seen improvements.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  8. 8
    • aimo5465
    • Experience with Colorectal (Colon) Ca...
    over 4 years ago
    aimo5465's Avatar

    Internal radiation

    Radiation

    Started around the same time as chemo. The staff is so nice at our clinic, and have supported us from day one.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  9. 9
    • aimo5465
    • Experience with Colorectal (Colon) Ca...
    over 4 years ago
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    Finished treatment

    Celebration

    This person has yet to add any details about this experience.

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  10. 10
    • aimo5465
    • Experience with Colorectal (Colon) Ca...
    over 4 years ago
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    Polyp removal

    Procedure or Surgery

    It was small, but during his colonoscopy a polyp was found and taken out for a biopsy

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  11. 11
    • aimo5465
    • Experience with Colorectal (Colon) Ca...
    over 3 years ago
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    Laparascopic colon surgery

    Procedure or Surgery

    Had a total proctocolectomy

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  12. 12
    • aimo5465
    • Experience with Colorectal (Colon) Ca...
    over 3 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Folfox and 5FU chemo that lasted 6 months and ended in February

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  13. 13
    • aimo5465
    • Experience with Colorectal (Colon) Ca...
    over 3 years ago
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    Cancer has spread/Metastasized

    Oh No

    Apparently it was still in his lymph nodes and no one thought to go more aggressive with chemo after surgery since they knew it had the potential to metastasize...

    1 Comment
  14. 14
    • aimo5465
    • Experience with Colorectal (Colon) Ca...
    about 2 years ago
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    Hospice

    Other Care

    Now in hospice care to control his pain and keep him comfortable...I'm afraid of losing him...

    1 Comment
  15. 15
    • aimo5465
    • Experience with Colorectal (Colon) Ca...
    over 4 years ago
    aimo5465's Avatar

    Diarrhea

    Side Effects

    We were told it was common to have diarrhea, so it didn't surprise us

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