auntiesqueeky's Journey with Fast Growing, Chronic Lymphocytic Leu...

Patient: Leukemia > Chronic Lymphocytic Leukemia (CLL) > Fast Growing

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Female, Age: 64

  1. 1
    over 4 years ago
    auntiesqueeky's Avatar

    Diagnosed

    Oh No

    My mind went blank, no questions, no emotions, had to go to hospital to have diagnoses confirmed.

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  2. 2
    over 4 years ago
    auntiesqueeky's Avatar

    Bone Marrow test

    Procedure or Surgery

    I felt little to nothing... pressure, no pain. My marrow was dry, so they had to take a piece of bone. I am a stage 3.

    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    over 4 years ago
    auntiesqueeky's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    My "cocktail": Allopurinol (lowers uric acid), Cytoxan, Vincristine, Rituxan. I completed 4 out of 6 treatments, than I broke out in a rash. Dermatologist believes it is an adverse reaction to one of my drugs. I've had it just over 4 weeks. It started on my stomach and chest, spread to my arms, back and shoulders. Now it's on my legs. In the beginning it was just VERY itchy and rashy, now my arms look like chicken pox. I have been put on Prednisone(20mg) and Triamcinolone(cream). The oncologist is stopping my chemo for at least another 2-3 weeks or until my rash is gone. Wish they had a "scratch" test to see which drug caused this.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    over 4 years ago
    auntiesqueeky's Avatar

    Allergic reaction

    Side Effects

    Of course "the rash", which I already mentioned. My mouth has become sensitive, esp. to salt. My hair was thinning, we cut it short and I still have my hair. I was already a type2 diabetic, my numbers aren't the best. I already had high BP, it giggles around a bit. I can't move without having to go pee first- if I don't I can't hold it. I'm so tired...... the list gos on and on.

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