HeartsToYou's Journey with Ovarian and Fallopian Tube Cancer

Patient: Ovarian and Fallopian Tube Cancer

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: almost 7 years ago, Female, Age: 71, Stage IIIC

  1. 1
    almost 5 years ago
    HeartsToYou's Avatar

    Diagnosed

    Oh No

    The 'Oh NO' was my diagnosed. Was getting fat tummy and what felt like a fallen bladder- went to 3 docs, showed them my pregnant belly which was non consistent with my small form, and they did nothing. I got so sick went to the ER, had a CAT scan and 2 residents came in and coldly and clinically diagnosed me with Ovarian cancer that had metasized to my omentum and liver. Within 1.5 hours I was installed in the Cancer ward- in shock not being able to wrap my head around it. Have spent my entire work life in Healthcare and had never come in contact with disease or the swelling would have registered with me. Life can change in the blink of an eye....so now I live One Day At A Time because that's all we have.

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  2. 2
    almost 5 years ago
    HeartsToYou's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I first had chemo before surgery because they couldn't operate in a "lake" the ascites. They had drained gallons off me in the hospital. The chemo dried up the rest- carbo/taxol/avastin x 6 treatments. My CA125 was normal after the 4th treatment. My problem was that I also got seconday infections while suffering from chemo effects so had fevers, respiratory infections, sinus infections. And I didn't get nausea but had an aversion to food- it was like my mind said, 'Don't even Think about putting that cracker in your mouth!' Therefore I dropped 5 sizes of clothes!! And I'm not big in the first place so I was a toothpick which made me even weaker. I also had WBC problems so sometimes had to have Neulasta shots which cost $9,000.00 apiece! My immune system was so low I wore a mask whenever I forced myself out of the house which wasn't often!

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    almost 5 years ago
    HeartsToYou's Avatar

    Bilateral salpingo-oophorectomy

    Procedure or Surgery

    My surgery showed a-mazing results....There was NO sign of cancer!! God or chemo had gotten rid of it. I had my ovaries removed, my omentum an it was no longer on my liver. Also, the gyn/onc told my husband that normally with chemo the organs get rubbery and mine were perfectly normal! I credit drinking Blueberry-Pomegranate juice every single day! Good anti oxidants. Twenty five other biopsies were taken and they were ALL negative. My surgery took only 1.5 hours, and an hour of that was my gyn/onc trying to FIND my ovary because it was buried under scar tissue....whether that was from the illness or from a lymphectomy I'd had 10 years prior I don't know. I like to believe that my cancer was "situational" and that under all that scar tissue my ovary just rotted. But don't know and guess will see!

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    almost 5 years ago
    HeartsToYou's Avatar

    Maintenance Therapy- Avastin

    Other Care

    I am on maintenance Avastin- Last week was #25. This is the longest my gyn/onc has had anyone of Avastin so think I'm a test subject for him. Avastin side effects for me are pain- aching in joints and muscles, sinus problems, occ mouth sores.....the aching is really bad in damp or cold weather which is why I am going to Florida for the winter!! Was able to just spend last January down there and the difference in temp really helped. I will be getting my treatments from one of my gyn/onc's colleagues in Florida who he went to school with. Am considering stopping Avastin in the Spring but have read that many people have been on it for years and years and years. One Day At A Time philosophy tells me I will decide then and enjoy the decreased aching all winter!

    3 Comments
  5. 5
    almost 5 years ago
    HeartsToYou's Avatar

    Remission

    Celebration

    I have been NED for (counting from when my CA125 was normal) 24 months....THAT is cause for celebration. Will credit the Lord for every day, every month I am given....to continue to do my "work" here- that includes taking my Therapy dog that I had trained for the purpose of volunteering- and we are not at University of Minnesota Children's Amplatz Hospital visiting the sick kids, recently the Oncology floor. Cady Grace is a natural! Calm, patient, obedient, she loves the petting....! And the smiles she brings to kids' faces in priceless.

    2 Comments
  6. 6
    almost 5 years ago
    HeartsToYou's Avatar

    Hearts as a Gift

    Decision Point

    Since this journey began I am given Hearts whenever I am worried or have a crisis. I have learned that they are my assurance from the Universe that all will turn out ok. I get them in all forms, string, rocks, water, potato chips, you name it! But the most amazing of all was right in the beginning when they would appear as little red hearts on the skin of my left forearm! When the crisis would pass they would disappear... And the morning of surgery my relatives and I were sitting around waiting and I had my bare feet up on a coffee table and my sister pointed to the bottom of my foot....there was a Heart callous...a BIG one! I outlined it in pen and took a picture and when the doctor came out of surgery with the great news that he found NO cancer all my relatives believed my Hearts too. So my screen name is wishing you your OWN God-Given Hearts on YOUR journeys!

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