jack0679's Journey with Nodular sclerosing

Patient: Hodgkin Disease > Classic Hodgkin Disease > Nodular sclerosing

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Female, Age: 31, Stage II

  1. 1
    • jack0679
    • Experience with Nodular sclerosing
    over 4 years ago
    jack0679's Avatar

    Diagnosed

    Oh No

    On November 8th, 2012 my life stopped in it's tracks and completely changed. The doctor called me at work to tell me that I had Hodgkins Lymphoma. I'll back up though and tell the story from the very beginning. Never ever had I thought that I would end up having cancer at age 26. I come from a very healthy family, no history of any kind of cancer. Health and fitness has always been of great importance to me. I exercise daily and eat a very healthy diet with lots of fruits and vegetables and minimal processed foods. I never had to go to the doctor because I was so healthy and in fact at the time of my diagnosis I didn't even have a primary doctor. I always thought that I was too healthy to have to worry about cancer. So at the time all this started life was going good for me. I was doing what I absolutely loved more than anything and that was teaching group fitness classes. I was also making pretty good money and was set to graduate with my bachelors degree in the spring. Life was definately moving forward and the future looked great. So one day I just happened to rub my neck and I felt a lump right above my collarbone. Its was painless and rubbery feeling. While I had absolutely no other symptoms that pointed towards cancer, I was still very concerned because had a friend who had lymphoma when he was 19 and a lump in the neck was his only symptom. Plus I just happened to work on a cancer floor too as a HUC so I was a little more aware to things like that. I really do feel like it was god intervening when I had it checked out. I am not someone who goes to the doctor so for me to make an appt with ENT to get it checked out says a lot. So I went and saw an ENT doctor and he did a fine needle biopsy of the swollen lymphnode. I remember asking him what he thought that it was and when he replied to me he couldn't look at me. He said, "Well it'll be interesting. It's either an infection or a tumor." When he said that I knew that even though he didn't outright say it, he believed it to be a tumor. It was there that even though I wished for it to be an infection, I knew deep down that it was lymphoma. I believe that god was using this to prepare me for what was to come. Two days later while I was at work, he called me and said, "I'm sorry honey but it's lymphoma." I broke down and started to cry. It is hard to remember details after that since my mind was in shock. It was at that point that life completely stopped for me and cancer took ownership of me.

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  2. 2
    • jack0679
    • Experience with Nodular sclerosing
    over 4 years ago
    jack0679's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The chemo I am doing is ABVD. It is four rounds (two treatments each round) for a total of eight chemo treatments. Treatments where done every other week. It is four different drugs and they are all administered seperately. It takes about two hours to infuse the premeds and chemo.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • jack0679
    • Experience with Nodular sclerosing
    over 4 years ago
    jack0679's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    The week after I got the news I had hodgkins lymphoma was filled with a ton of tests and procedures that where used to stage me and get me ready for chemo. I'll try and remember everything I had done and give just a few of my thoughts on it. PET Scan - This was the very first thing I had done so it was more mentally upsetting. I sat there waiting to get scanned and I still couldn't believe that this was really happening. I was scared and struggled to hold back my tears. I didn't bring anyone to this appt with me so after this all my appts I bring a friend along for support. Bone marrow biopsy - I had heard these hurt a lot. My doctor number me up pretty good but it was still very uncomfortable and my back was very sore after. Port Placement - This went ok, it did take quite a while for me to get used to my port. I really didn't want one because it was just another reminder that I was a cancer patient. EKG/Pulmonary Function Test - We had to make sure my heart and lungs where healthy enough to handle the chemo since it can damage the tissue. Both test where simple and painless. CT - Just like the PET scan. The doctor just wanted a different view of my tumors. Surgery to remove the swollen lymphnode so they could have a larger sample to get a confirmed diagnosis. I was so wishing that it would come back saying I didn't have lymphoma.

    Went as Expected: Neutral/NA
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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