lynn1950's Journey with Breast Cancer

  1. 1 Oh No Icon Oh No
  2. 2 Oh No Icon Oh No
  3. 3 Procedure or Surgery Icon Procedure or Surgery
  4. 4 Procedure or Surgery Icon Procedure or Surgery
  5. 5 Procedure or Surgery Icon Procedure or Surgery
  6. 6 Procedure or Surgery Icon Procedure or Surgery
  7. 7 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  8. 8 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  9. 9 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  10. 10 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  11. 11 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  12. 12 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  13. 13 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  14. 14 Drug or Chemo Therapy Icon Drug or Chemo Therapy
  15. 15 Drug or Chemo Therapy Icon Drug or Chemo Therapy
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  16. 16 Radiation Icon Radiation
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  17. 17 Radiation Icon Radiation
  18. 18 Radiation Icon Radiation
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  19. 19 Side Effects Icon Side Effects
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  33. 33 Celebration Icon Celebration
  34. 34 Celebration Icon Celebration
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Patient: Breast Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 10 years ago, Female, Age: 67, Stage III, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Misdiagnosed

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  2. 2
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Depression

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  3. 3
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Axillary Lymph Node Dissection

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  4. 4
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Double Mastectomy

    Procedure or Surgery

    Scarring and self-image issues.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  5. 5
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    I loved my port!

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  6. 6
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Sentinel lymph node biopsy

    Procedure or Surgery

    Took place immediately preceding bilateral mastectomy.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  7. 7
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Anemia medicine

    Drug or Chemo Therapy

    It saved my life! Impact was positive.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  8. 8
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    Take Boniva once a month.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  9. 9
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Wow. Chemo is no picnic. Had dose dense Adriamyin/Cytoxin and then Paclitaxol. Had a neulasta shot a couple of days after the A/C and gave myself Neupogen shots after the Paclitaxol. Received treatment on Wednesday. Felt fine until Friday. Friday p.m - Monday a.m. was miserable, then began an upswing which continued until the next treatment.

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  10. 10
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Depression medicine

    Drug or Chemo Therapy

    Had a hard time finding the right medication and it always took a long time to take effect. Once it worked (Abilify and Zoloft) it worked well.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  11. 11
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Hormone therapy

    Drug or Chemo Therapy

    I take daily Arimidex and experience moderate to severe joint pain.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  12. 12
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Medicine for low white blood cell count

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  13. 13
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Nausea medicine

    Drug or Chemo Therapy

    Emend and Zofran really helped with the nausea, although I was pretty much out for the count for a few days each treatment.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  14. 14
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Pain medicine

    Drug or Chemo Therapy

    Thank goodness for oxycodone. It does cause constipation, a small price to pay.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    2 Comments
  15. 15
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  16. 16
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Radiation

    Radiation was exhausting and I think the exhaustion helped bring on an episode of major depression that started during rads and steam rollered me weeks after radiation was complete.

    Painless Experience: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  17. 17
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    External radiation

    Radiation

    Radiation wiped me out in the long run. I did not burn much; I was vigilant about using the lotions that the cancer center gave me. These were aquafor and Regence (I think.) The second had lidocaine because I had begun to burn and the burn itched. I had to stay at a facility 65 miles from home during the work week, so that I could work two ten hour days (I was part-time at my work) and then drove home for the weekend. I think this schedule really contributed to my exhaustion and subsequent major depressive episode. I did not miss one day of work.....

    Painless Experience: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  18. 18
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  19. 19
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Side Effects

    During chemo I experienced severe anemia, but refused a blood transfusion. Finally, I was given a drug that had lost its approval for chemo-induced anemia, because of its possible side effects. It worked for me and I felt so much better in no time.

    0 Comments
  20. 20
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Side Effects

    As a result of chemo and arimidex, I have osteopenia and take Boniva to counteract the effects.

    0 Comments
  21. 21
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
  22. 22
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Side Effects

    As a result of the oxycodone, I had constipation which was relieved by stool softeners.

    0 Comments
  23. 23
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
  24. 24
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Side Effects

    I had diarrhea from the A/C

    0 Comments
  25. 25
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Side Effects

    This came as my radiation treatment was about mid way. I suffered from fatigue for about two 1/2 years following treatment and only now am back in my groove.

    0 Comments
  26. 26
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Side Effects

    At the nadir of each chemo treatment (usually days 3-5) is when I experienced fever, chills, and sweat.

    0 Comments
  27. 27
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  28. 28
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Side Effects

    Got this with the taxol related chemo.

    0 Comments
  29. 29
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Side Effects

    Part of A/C and T.

    0 Comments
  30. 30
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Side Effects

    In the beginning I took a lot of care. I've become pretty laissez faire about my cancer arm side, but I do wear a lymphedema sleeve if I am flying. I have been diagnosed with mild lymphedema.

    0 Comments
  31. 31
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Side Effects

    The Arimidex totally dries me out.

    0 Comments
  32. 32
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
  33. 33
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Birth

    Celebration

    After a major meltdown that occurred within weeks of the ending of active treatment, it has taken me two years to get my feet back under me. It has been a struggle, and there were times when I felt like just giving up. I am grateful to be alive, finally feel good, and I just became a first time grandma 10 days ago. Life is good and worth the fight.

    0 Comments
  34. 34
    • lynn1950
    • Experience with Breast Cancer
    over 5 years ago
    lynn1950's Avatar

    Hike yesterday

    Celebration

    Yesterday I hiked with friends to a mountain lake. It was a beautiful, wildflower filled day. The fish were jumping. Tiny neon blue dragonflies and periwinkle butterflies darted in the meadows of lupine and Indian paintbrush. It was an exhausting, exhilarating day. As I put one foot in front of the other on the long, hot dusty uphill part of the trek back, I was struck by gratitude. Three years ago at this time, I was nearly dead from chemo. Then I suffered a life altering debilitating depression. Now life is good - very, very good.

    3 Comments
  35. 35
    • lynn1950
    • Experience with Breast Cancer
    5 months ago
    lynn1950's Avatar

    Remission

    Celebration

    I have been in remission for eight years now. Life keeps getting better and better. I am still on Arimidex (boo), I see my oncologist once a year, and just this summer went on a 6 day rafting trip down the Salmon River with other survivors sponsored by River Discovery. I now have three grandchildren (lots of fun), osteoporosis (thanks, Arimidex), a little Burro camper (yeah, Sisters on the Fly), and I am feeling good.

    1 Comment