ROBERT's Journey:

Patient: Prostate Cancer > Adenocarcinoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Male, Age: 63, Stage II

  1. 1
    • ROBERT
    • Experience with Adenocarcinoma, Prostat...
    over 4 years ago
    ROBERT's Avatar

    Diagnosed

    Oh No

    JUST DIAGNOSED. 12/12 POSITIVE 60-80% WITH GLEASONS OF 6-7-8. DONT KNOW WHATS NEXT. JUST IN SHOCK. LOCKS GLOAMY? MORE TESTS NEXT WEEK. I WONDER IF THERE IS ANY CHANCE OF ORGAN CONTAINMENT OR A CURE AT THIS POINT.

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  2. 2
    • ROBERT
    • Experience with Adenocarcinoma, Prostat...
    over 4 years ago
    ROBERT's Avatar

    Robotic assisted laparoscopic prostatectomy

    Procedure or Surgery

    I had the surgery yesterday and it went really well. Although its no pic nic the fact that I am on the internet tells you that I am not totally incapacatated. The doctor felt from the begining that it would most likely be organ confined and that i had an 80% chance of full recovery. He was able to spare both nerve bundles even though the biopsy showed neural invasion which worried me. I am minus the prostate and lymph glands and hopefully all of the cancer. Next week will tell me more after i get the results of the biopsy of the lymph and the disection of the prostate. For the moment I am enjoying the good news.

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • ROBERT
    • Experience with Adenocarcinoma, Prostat...
    over 4 years ago
    ROBERT's Avatar

    Cancer has spread/Metastasized

    Oh No

    At my one week follow up after surgery I find that my journey is not over. I will require additional treatment. The cancer was more evasive than i had hoped for and envaded both sets of lymph nodes and the seminal vesicles. In addition had left the prostate at one margin. Even though it was all removed I find that there is a 60% chance of cancer reoccurence at some time in the next few years. Hormonal Therapy and possible radiation after an appointment with the oncologist next week. This will hopefully give me better odds at being a survivor. My condition is treatable and not life threatening.

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  4. 4
    • ROBERT
    • Experience with Adenocarcinoma, Prostat...
    about 4 years ago
    ROBERT's Avatar

    Hormone therapy

    Drug or Chemo Therapy

    I will be starting hormone therapy this week, casadex and lupron shots. I choose life over sex. hot flashes? oh really! How things change so quickly.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  5. 5
    • ROBERT
    • Experience with Adenocarcinoma, Prostat...
    about 4 years ago
    ROBERT's Avatar

    Laparoscopic radical prostatectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  6. 6
    • ROBERT
    • Experience with Adenocarcinoma, Prostat...
    about 4 years ago
    ROBERT's Avatar

    Hormone therapy

    Drug or Chemo Therapy

    Lupron shot 2 weeks ago and everything is the same; no side effects. 6 weeks after surgery and my continence is much better but not able to go without a few kleenex for insurance. ed will be a part of me now but exploring new ideas and have not given up although at this point in my life its not that critical. The last 2 months have been an extremely challenging time for me but now i finally feel like i have crossed the threshold and am doing fine. What doesnt kill us does make us stronger.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  7. 7
    • ROBERT
    • Experience with Adenocarcinoma, Prostat...
    about 4 years ago
    ROBERT's Avatar

    Cancer is shrinking

    Celebration

    10 weeks post RP surgery and two consecutive blood test show undetected psa! Finally the exercises are working as I am pad free and continience no longer a concern. Now I need to focus on living without cancer being on my mind 24/7. i am contiually pulled between literature on unconventional cancer prevention and treatments and sticking with the standard medical field reccomendations. My scientific mind dispells the unconventional but they still invade my reasoning process. Today I read that iodine defeciency is rampant and a cause in prostate cancer, yesterday was Vit D and toxins and tomorrow with be something else. How does one come to terms with the constant bombardment of information and the ability to decifer it? I always had a healthy diet and was extremely healthy and instead of going the direction of over the top healthy and drinking green juice everyday, now that I see my life possibly much less shorter than I did before I have decided to eat less healthy and enjoy the time I have since there doesnt seem to be much proof that becoming a health guru will reverse or stop the cancer. I was interested in the recent question on what helped people navigate their journey but do not see any specific remedies that worked only reccomendations on making the journey more comfortable although valuable. My doctors tell me there is no evidence that the hollistic center approaches have no evidence of helping anyone with cancer. I would be interested to hear from anyone that has experience with them. Although my present state is good and my numbers good currently I am concerned that it is only temporary as in many cases and that I will be contemplating new approaches and treatments in the future. Can i stop the disease from growing by non medical means: dietary changes, supplements, or antioxidants? Is my chi out of alignment? I remain overwhelmed! The good news is with all that has happened to me thus far I have found the strength to thrive.

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  8. 8
    • ROBERT
    • Experience with Adenocarcinoma, Prostat...
    over 2 years ago
    ROBERT's Avatar

    Cancer has spread/Metastasized

    Oh No

    I am just over 2 years post op and went 1 yr with lupron therapy but decided to stop it and see what happens. It takes nearly a year for it to bet totally out of your system and now after one year my Psa is starting to climb. I have slowly gone from undetectable to .07 in 6 months. My Oncologist tells me we will wait until it reaches the threashold of .2 before I go back on lupron so I figure I have a few more months before I am chemically neutered again. The journey continues.

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