veedub's Journey with Diffuse Large B-Cell Lymphoma

Survivor: Non-Hodgkin Lymphoma (NHL) > B-Cell Lymphoma > Diffuse Large B-Cell Lymphoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 4 years ago, Female, Age: 79, Stage III

  1. 1
    • veedub
    • Experience with Diffuse Large B-Cell Ly...
    about 4 years ago
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    Diagnosed

    Oh No

    immediately bought a t-shirt that said KEEP CALM AND CARRY ON. decided that i was going to be climbing a XXX of a mountain, and i needed lots of sherpas. my husband started a "Lotsa Helping Hands" website for me so i could get help with rides to treatment, and so on.

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  2. 2
    • veedub
    • Experience with Diffuse Large B-Cell Ly...
    about 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    it was cumulative. i sailed through the first couple of treatments and then the Hammer of the Universe came down. i was on R-CHOP, and on prednisone crash day i began a two-week journey through the shamanic underworld which was worse each time. holy cow.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • veedub
    • Experience with Diffuse Large B-Cell Ly...
    about 4 years ago
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    Depression/Anxiety

    Side Effects

    i wrote a comic book about it. it was totally shamanic: i went to the underworld, died and was torn apart and reassembled, then came back with an insight or two each time. main insight: tell the truth. life is too short to remember your own lies.

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  4. 4
    • veedub
    • Experience with Diffuse Large B-Cell Ly...
    about 4 years ago
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    Finished treatment

    Celebration

    only i have been unable to feel very celebratory. i'm on an emotional roller-coaster ride. trying to get back into exercising and as much normality as possible, but the holidays are really depressing in that there's so much expectation thati should bounce right back and be my old self. and i have changed. i know i have to take a new life direction but don't know where. still don't know if what i feel is part of late effects, and it's hard to give myself time.

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  5. 5
    • veedub
    • Experience with Diffuse Large B-Cell Ly...
    over 3 years ago
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    Remission

    Celebration

    my oncologist doesn't want to see me for another 6 months!! i will have a PET scan next week just to make sure everything's cool, but other than that, he sez to stick a fork in me, 'cause i'm DONE!!!

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  6. 6
    • veedub
    • Experience with Diffuse Large B-Cell Ly...
    over 3 years ago
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    Remission

    Celebration

    a little late--the onc used the R word back in june, and my last PET scan shows NED, so i don't have to get checked again until december. w00t!

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  7. 7
    • veedub
    • Experience with Diffuse Large B-Cell Ly...
    over 3 years ago
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    adventure camp in the Colorado Rockies

    Celebration

    ...well, almost. but more important, i hooked up with a group called Epic Experience which provides adventure camps for cancer survivors. we went kayaking on the colorado river waaaay out in the mountains near, well, i think the nearest town is gypsum. at the back of beyond, in other words. check out their website at epicexperience.org --these camps are FREE, including airfare. and they are, as advertised, epic. what a great thing!!!

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  8. 8
    • veedub
    • Experience with Diffuse Large B-Cell Ly...
    almost 3 years ago
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    Other

    Milestones

    we just heard that our offer on a house in portland was accepted!! w00t!

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  9. 9
    • veedub
    • Experience with Diffuse Large B-Cell Ly...
    about 4 years ago
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    My mind/Sense of Humor

    Loss

    well, not my sense of humor, but i was learning portuguese before my diagnosis and now it's all gone and i have to start again. i was working on writing a book and i can't even look at the manuscript. i am very touchy and don't want to be around groups of people. feeling cranky and bitchy and guilty for surviving when so many don't.

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