hughcellist's Journey with Multiple Myeloma

Patient: Multiple Myeloma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 10 years ago, Male, Age: 70

  1. 1
    over 4 years ago
    hughcellist's Avatar

    Diagnosed

    Oh No

    It was an annual physical when higher than normal proteins were present in the blood sample. Thanks to my General Practioner, he spotted the trend.

    0 Comments
  2. 2
    over 4 years ago
    hughcellist's Avatar

    Stem Cell Transplants

    Procedure or Surgery

    The protocal at that time was to collect my own stem cells for a stem cell transplant and a possible second depending on reponse from the first. I had the first SCT in November 2007 followed by a second in February 2008.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. 3
    over 4 years ago
    hughcellist's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Front line therapy included Thaildomide with Dexemethesone. It seems all of the side effects visited me. Neuropathy, constipation, blood sugars out of whack, etc.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. 4
    over 4 years ago
    hughcellist's Avatar

    Should we initiate maintainence therapy following stem cell transplant?

    Decision Point

    Research was saying, after stem cell transplant, patients should consider some maintainence therapy. However quality of life issues are of prime importance. What is the likelihood that quality of life is better in maintainence therapy versus time until relapse. The side effects of the chemos present their own issues.

    0 Comments
  5. 5
    over 4 years ago
    hughcellist's Avatar

    Partial Remission

    Celebration

    Even though we continue to keep an eye on the event of a relapse - we do celebrate daily for this life. There are newer therapies being discovered that continue to raise hope for Myeloma patients.

    0 Comments