mom24's Journey with Brain and Spinal Cord Tumors in Adults

Caregiver: Brain and Spinal Cord Tumors in Adults

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Male, Age: 28

  1. 1
    • mom24
    • Experience with Brain and Spinal Cord Tu...
    almost 5 years ago
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    Diagnosed

    Oh No

    Medulloblastoma

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  2. 2
    • mom24
    • Experience with Brain and Spinal Cord Tu...
    almost 5 years ago
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    Posterior fossa craniectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  3. 3
    • mom24
    • Experience with Brain and Spinal Cord Tu...
    almost 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    three drugs...cytoxan, vincristine, cisplatin on different days with Neulasta shot intermittently, just started three weeks ago, nausea, stomach pain

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • mom24
    • Experience with Brain and Spinal Cord Tu...
    almost 5 years ago
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    External radiation

    Radiation

    31 treatments of IMRT radiation, radiation is done currently; side effects include stomach upset, redness of skin on back, sore throat

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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